“They had to watch”: How parents perceive the suffering of siblings of children with cancer
Both parental groups described sibling suffering similarly despite different outcomes for their child with cancer. The idea of sibling suffering by bearing witness to what the child with cancer experienced is unique and worthy of further understanding. This work highlights the need for sibling and parent psychosocial assessment and palliative intervention throughout cancer treatment. Gaining longitudinal input from siblings and parents regarding the experience of suffering is a critical next step to develop tailored interventions.
Authors
- Kristin A. Long (ORCID: https://orcid.org/0000-0001-8486-2545)
- Meaghann S. Weaver
- Paige Kube (ORCID: https://orcid.org/0009-0009-8960-5826)
- Anne‐Sophie Darlington (ORCID: https://orcid.org/0000-0003-4387-7278)
- Devon Ciampa
- Lori Wiener (ORCID: https://orcid.org/0000-0002-9573-8870)
- Anna Katharina Vokinger (ORCID: https://orcid.org/0000-0002-7307-2502)
- Ursula M Sansom-Daly
Institutions
- St. Jude Children's Research Hospital (US)
- University of Lucerne (CH)
- George Washington University (US)
- Cancer Institute (WIA) (IN)
- UNSW Sydney (AU)
- Center for Cancer Research (US)
- University of Southampton (GB)
- National Cancer Research Institute (GB)
Publication Details
- Journal
- Palliative & Supportive Care
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1017/s1478951525100825
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49
Funders
- National Institutes of Health
- Graduiertenakademie, Technische Universität Dresden
- National Cancer Institute