Optimizing Patient Experiences and Outcomes: Proposal to Develop an Endometriosis Care Quality Collaborative in the United States
Endometriosis is a chronic disease that is characterized by pain, infertility, and reduced quality of life. Despite varied treatment modalities, a high proportion of individuals experience debilitating symptoms and develop comorbid pain conditions. In this manuscript, we describe the current state of endometriosis care in the United States and advocate for the establishment of an Endometriosis Care Quality Collaborative that would involve high-volume surgical management and multidisciplinary approaches to clinical care and research. We present quality and ethical arguments and outline a plan to design and implement accredited centers of expertise. This work was completed by members of the Endometriosis Care Quality Collaborative Taskforce and involved collaboration between members of multiple national societies, including the AAGL, the North American Society for Pediatric and Adolescent Gynecology, the Society of Gynecologic Surgeons, and the Society of Reproductive Surgeons.
Authors
- Maurício Simões Abrão (ORCID: https://orcid.org/0000-0003-1320-3010)
- Shaheen Khazali (ORCID: https://orcid.org/0000-0001-7232-8062)
- Rebecca Flyckt (ORCID: https://orcid.org/0000-0001-5878-7537)
- S. S. Singh (ORCID: https://orcid.org/0009-0000-5022-6874)
- Shannon Cohn (ORCID: https://orcid.org/0000-0002-0432-5684)
- H Dionisi
- Ted Lee (ORCID: https://orcid.org/0000-0002-4751-5912)
- S Vilasagar (ORCID: https://orcid.org/0000-0001-7384-0105)
- Mindy S. Christianson (ORCID: https://orcid.org/0000-0001-6749-2773)
- Megan S. Orlando (ORCID: https://orcid.org/0000-0002-7625-8695)
- Nucelio Lemos (ORCID: https://orcid.org/0000-0002-3184-8229)
- Nash S. Moawad (ORCID: https://orcid.org/0000-0001-9401-4785)
- Cara R. King
- Louise P. King (ORCID: https://orcid.org/0009-0002-2807-6085)
Institutions
- Cleveland Clinic (US)
- Harvard University (US)
- Universidad Nacional de Córdoba (AR)
- University of Toronto (CA)
- University Hospitals of Cleveland (US)
- Ottawa Hospital (CA)
- Cleveland Clinic Lerner College of Medicine (US)
- NYU Langone Health (US)
- Atrium Medical Cente (US)
- Endometriosis UK (GB)
- Center for Practical Bioethics (US)
- University Hospitals Cleveland Medical Center (US)
- Beneficência Portuguesa de São Paulo (BR)
- Center for Special Minimally Invasive and Robotic Surgery (US)
- ElSohly Laboratories (United States) (US)
- University of Colorado Anschutz Medical Campus (US)
- Cordoba University (US)
- University of Colorado Denver (US)
- Florida College (US)
Publication Details
- Journal
- Journal of Minimally Invasive Gynecology
- Published
- 2025-10-10
- DOI
- https://doi.org/10.1016/j.jmig.2025.09.525
- Citations
- 2
- Primary Topic
- Endometriosis Research and Treatment
- Type
- article
- Field-Weighted Citation Impact
- 3.40