Barriers and facilitators to accessing support for people affected by rare dementias who are from culturally, ethnically and linguistically diverse backgrounds
This study identified a lack of awareness of dementia within cultures as well as the wider community that was exacerbated by additional issues such as geographic, financial and gender disparities. Clinical care recommendations synthesised from the study results highlight a need to increase awareness of rare dementias within culturally diverse communities, as well as improving cultural competence within health and social care staff.
Authors
- Jessica Jiang (ORCID: https://orcid.org/0000-0002-7074-3032)
- Emma Harding (ORCID: https://orcid.org/0000-0001-9675-2335)
- Sebastian J. Crutch (ORCID: https://orcid.org/0000-0002-4160-0139)
- Anna Volkmer (ORCID: https://orcid.org/0000-0002-4149-409X)
- Kerry Dathan
Institutions
- UK Dementia Research Institute (GB)
- The London College (GB)
- University College London (GB)
Publication Details
- Journal
- International Journal for Equity in Health
- Published
- 2025-10-09
- DOI
- https://doi.org/10.1186/s12939-025-02634-9
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institute for Health and Care Research