Core outcome domain sets for clinical trials in epidermolysis bullosa — a COSEB protocol to achieve consensus on “what” to measure
This study Has been prospectively registered in the COMET database on 23 October 2017 and updated on 24 January 2022 (registration number 1033 https://www.comet-initiative.org/studies/details/1033 ).
Authors
- Verena Wally (ORCID: https://orcid.org/0000-0001-8705-3890)
- Anna M.G. Pasmooij (ORCID: https://orcid.org/0000-0003-0641-3829)
- Martin Laimer (ORCID: https://orcid.org/0000-0002-6932-0374)
- C.A.C. Prinsen (ORCID: https://orcid.org/0000-0002-0956-3788)
- Jan Kottner (ORCID: https://orcid.org/0000-0003-0750-3818)
- Dimitra Kiritsi (ORCID: https://orcid.org/0000-0002-2331-8981)
- Tobias Welponer (ORCID: https://orcid.org/0000-0003-3159-0720)
- Maria C. Bolling (ORCID: https://orcid.org/0000-0003-2086-9363)
- Peter C. van den Akker (ORCID: https://orcid.org/0000-0002-3734-753X)
- Phyllis I. Spuls (ORCID: https://orcid.org/0000-0002-6035-2863)
- Eva W H Korte (ORCID: https://orcid.org/0000-0001-9166-5654)
Institutions
- University Medical Center Groningen (NL)
- University of Freiburg (DE)
- University of Groningen (NL)
- Utrecht University (NL)
- Aristotle University of Thessaloniki (GR)
- Paracelsus Medical University (AT)
- University Medical Center Freiburg (DE)
- Amsterdam UMC Location University of Amsterdam (NL)
- Amsterdam Neuroscience (NL)
- Pharmo Institute (NL)
- EB House Austria (AT)
- Medicines Evaluation Board (NL)
- Institute of Infection and Immunity (CA)
- Charité - Universitätsmedizin Berlin (DE)
- University of Amsterdam (NL)
Publication Details
- Journal
- Trials
- Published
- 2025-10-09
- DOI
- https://doi.org/10.1186/s13063-025-09052-w
- Primary Topic
- Skin and Cellular Biology Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00