Understanding posterior drooling in children and young people with neurodevelopmental disabilities: a parental perspective
This qualitative study offers valuable initial insights into how parents characterise posterior drooling, shedding light on crucial information to enhance recognition and diagnosis. The findings underscore the need for earlier detection and identification of posterior drooling symptoms, supported by improved communication between healthcare professionals and families through a shared language that bridges clinical and everyday observations. The extensive impact on children and families also highlights the urgency of providing clearer guidance to parents on managing fluctuating or worsening symptoms, and of developing more comprehensive, tailored care strategies.
Authors
- Michèl A.A.P. Willemsen (ORCID: https://orcid.org/0000-0001-7860-7791)
- J.J.W. van der Burg (ORCID: https://orcid.org/0000-0001-8114-0459)
- Corrie E. Erasmus (ORCID: https://orcid.org/0000-0002-6657-941X)
- Angret de Boer (ORCID: https://orcid.org/0000-0002-8281-5873)
- Frank J. A. van den Hoogen (ORCID: https://orcid.org/0000-0002-2935-5599)
- Karen van Hulst (ORCID: https://orcid.org/0000-0001-9456-3450)
- Lynn B. Orriëns (ORCID: https://orcid.org/0000-0003-0561-4768)
- Petra Maille-Wisse
Institutions
- Leiden University (NL)
- Radboud University Nijmegen (NL)
- Radboud University Medical Center (NL)
- Radboud Institute for Molecular Life Sciences (NL)
- Amalia Kinderziekenhuis (NL)
- Sint Maartenskliniek (NL)
Publication Details
- Journal
- BMC Pediatrics
- Published
- 2025-10-09
- DOI
- https://doi.org/10.1186/s12887-025-06039-z
- Primary Topic
- Cerebral Palsy and Movement Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- JKF Kinderfonds