P167 Integrated care pathways for hepatitis B: a holistic co-designed service for people living with hepatitis B in England

<h3></h3> The success of the Emergency Department opt-out Blood Borne Virus testing programme in England has led to &gt;4800 people being newly diagnosed with HBV, and &gt;1100 identified as not in care. Currently viral hepatitis services in are managing a rapidly increasing number of new and re-engaging patients. There is an urgent need to develop a service specification for specialised adult outpatient Hepatitis B Virus (HBV) Services which provide assessment and ongoing management of HBV (+/-) HDV and associated complications to support individuals to stay well, remain engaged in care and have equitable access to therapy if indicated. In 2024, NHS London established the Hepatitis B Pathway Development Task &amp; Finish Group to develop holistic pathways and services for people living with Hepatitis B. More than 50 stakeholders were consulted, including people with lived experience, British Liver Trust, World Hepatitis Alliance, clinicians, allied healthcare professionals, General Practitioners, UKHSA and Integrated Care Board members. Representatives from each stakeholder group contributed to the Task &amp; Finish outputs. Six areas were identified as being under resourced: Presence of the patient voice in decision making Placement of specialised HBV care within Integrated Care Systems Agreed Standards of Equitable Care Data Management &amp; Cohort Management Tools Engagement Support Role of Primary care and community-based care The Task &amp; Finish Group developed: A co-designed hepatitis B service model to provide care for patients needing diagnosis, assessment, treatment, monitoring, community based integrated care and the vaccination of contacts. A digital solution for a patient cohort management tool and patient registry to provide oversight of everyone identified as hepatitis B surface antigen positive within the ICS, to ensure engagement can be supported and case cascade outcomes collated from a plurality of providers. A workforce solution to include specialist expertise, people with lived experience, and administrative support. The NHS London Pathways group co-designed a care model (figure 1) to ensure quality of life and wellbeing outcomes for people living with HBV are maximised, that negative outcomes (cirrhosis, hepatocellular carcinoma, transplantation, death) are minimised, that information is culturally and language competent (in recognition of the disproportionate number of people from diverse backgrounds living with HBV) and that people with Hepatitis B are central to decisions about their health and social care. In order to achieve Hepatitis B elimination targets, co-designed models of Hepatitis B care must be priority for Integrated Care Systems.

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Published
2025-10-01
DOI
https://doi.org/10.1136/gutjnl-2025-basl.177
Primary Topic
Clinical practice guidelines implementation
Type
article
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article

P167 Integrated care pathways for hepatitis B: a holistic co-designed service for people living with hepatitis B in England

Ian Jackson, Patrick T.F. Kennedy, Daniel Forton, Binta Sultan et al.
Clinical practice guidelines implementation
article

P167 Integrated care pathways for hepatitis B: a holistic co-designed service for people living with hepatitis B in England

Ian Jackson, Patrick T.F. Kennedy, Daniel Forton, Binta Sultan, Helen Boothman, Vanessa Hebditch, Stuart Flanagan, Sital Shah, Stephen Hindle, Rachel Hill‐Tout, David Leeman, Katherine McNaughton, Julian Surey, Simon Barton, Kosh Agarwal, Jessica Carter, Doug MacDonald, Rachel Halford, Doug Thorburn, Ashley Brown, Ruth Simmons, Denis Onyango, Bo Wang, Claire Martin, Joy Ko, C. Gardner, Nina van Zyl, Kirn Sandhu, Alice Ward, Supa Chantschool, Amy Bowkett, Gary Dark
article en

Abstract

<h3></h3> The success of the Emergency Department opt-out Blood Borne Virus testing programme in England has led to &gt;4800 people being newly diagnosed with HBV, and &gt;1100 identified as not in care. Currently viral hepatitis services in are managing a rapidly increasing number of new and re-engaging patients. There is an urgent need to develop a service specification for specialised adult outpatient Hepatitis B Virus (HBV) Services which provide assessment and ongoing management of HBV (+/-) HDV and associated complications to support individuals to stay well, remain engaged in care and have equitable access to therapy if indicated. In 2024, NHS London established the Hepatitis B Pathway Development Task &amp; Finish Group to develop holistic pathways and services for people living with Hepatitis B. More than 50 stakeholders were consulted, including people with lived experience, British Liver Trust, World Hepatitis Alliance, clinicians, allied healthcare professionals, General Practitioners, UKHSA and Integrated Care Board members. Representatives from each stakeholder group contributed to the Task &amp; Finish outputs. Six areas were identified as being under resourced: Presence of the patient voice in decision making Placement of specialised HBV care within Integrated Care Systems Agreed Standards of Equitable Care Data Management &amp; Cohort Management Tools Engagement Support Role of Primary care and community-based care The Task &amp; Finish Group developed: A co-designed hepatitis B service model to provide care for patients needing diagnosis, assessment, treatment, monitoring, community based integrated care and the vaccination of contacts. A digital solution for a patient cohort management tool and patient registry to provide oversight of everyone identified as hepatitis B surface antigen positive within the ICS, to ensure engagement can be supported and case cascade outcomes collated from a plurality of providers. A workforce solution to include specialist expertise, people with lived experience, and administrative support. The NHS London Pathways group co-designed a care model (figure 1) to ensure quality of life and wellbeing outcomes for people living with HBV are maximised, that negative outcomes (cirrhosis, hepatocellular carcinoma, transplantation, death) are minimised, that information is culturally and language competent (in recognition of the disproportionate number of people from diverse backgrounds living with HBV) and that people with Hepatitis B are central to decisions about their health and social care. In order to achieve Hepatitis B elimination targets, co-designed models of Hepatitis B care must be priority for Integrated Care Systems.

Central and North West London NHS Foundation Trust (GB)
Openalex Percentile: Top 62%
Clinical practice guidelines implementation
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