Top 10 research priorities for pulmonary fibrosis in Australia: an update

In 2019, we published the top 10 research priorities for pulmonary fibrosis (PF) as identified by people living with PF, carers and healthcare professionals. Five years on, we report on the updated research priorities. The study involved an online questionnaire (181 respondents); an in-person workshop (25 participants) to discuss priorities and establish final list for ranking, and a second online questionnaire with 31 research questions for ranking (252 respondents). Preservation of lung health and alleviating symptom burden remained important. New priorities included achieving a rapid diagnosis and developing biomarkers. The updated priorities will guide research efforts to ensure alignment with important needs.

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Publication Details

Journal
Thorax
Published
2025-10-08
DOI
https://doi.org/10.1136/thorax-2025-223844
Primary Topic
Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
Type
article
Field-Weighted Citation Impact
0.00
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article

Top 10 research priorities for pulmonary fibrosis in Australia: an update

Alison J. Hey‐Cunningham, Gabriella Tikellis, Anne E. Holland, Tamera J. Corte et al.
Thorax
Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
article

Top 10 research priorities for pulmonary fibrosis in Australia: an update

Alison J. Hey‐Cunningham, Gabriella Tikellis, Anne E. Holland, Tamera J. Corte, Allison Tong, Yet Hong Khor, Tania Hyde
article en

Abstract

In 2019, we published the top 10 research priorities for pulmonary fibrosis (PF) as identified by people living with PF, carers and healthcare professionals. Five years on, we report on the updated research priorities. The study involved an online questionnaire (181 respondents); an in-person workshop (25 participants) to discuss priorities and establish final list for ranking, and a second online questionnaire with 31 research questions for ranking (252 respondents). Preservation of lung health and alleviating symptom burden remained important. New priorities included achieving a rapid diagnosis and developing biomarkers. The updated priorities will guide research efforts to ensure alignment with important needs.

ThoraxVol. 81(1)
The University of Sydney (AU), Royal Prince Alfred Hospital (AU), UNSW Sydney (AU), Institute for Breathing and Sleep (AU), Alfred Health (AU), National Health and Medical Research Council (AU), Monash University (AU)
Openalex Percentile: Top 59%
Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
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Top 10 research priorities for pulmonary fibrosis in Australia: an update — Alison J. Hey‐Cunningham, Gabriella Tikellis, et al. · Thorax (2025) | TGRS Research Map | TGRS