P15.21.A MAPPING REHABILITATION SERVICES FOR INDIVIDUALS WITH GLIOMA OR MENINGIOMA IN SWEDEN: A NATIONWIDE REGISTRY STUDY

Abstract BACKGROUND Patients diagnosed with glioma or meningioma face complex and evolving needs throughout the disease trajectory. According to Swedish guidelines, all patients should receive assessment and access to appropriate rehabilitation services, addressing cognitive, physical, and existential challenges experienced by patients and their families. The aim of this project is to explore rehabilitation services provided to patients diagnosed with glioma or meningioma in Sweden. A secondary aim is to examine potential disparities related to diagnosis, sex, age, or healthcare region. MATERIAL AND METHODS Adults diagnosed with glioma or meningioma registered in the Swedish Brain Tumor Registry (SBTR) between 2021-2023 with available patient-reported data were included. Diagnosis, healthcare region, patient characteristics, and patient-reported experiences of care (PREM) collected 7-9 months after surgery, and patient-reported outcome measures (PROM) (EORTC QLQ-C30, BN20), and registry-specific questions regarding rehabilitation, collected three months or one-year post-surgery, were retrieved. Descriptive statistics are compiled. RESULTS Patients aged 18-91 years with a pathologically confirmed glioma or meningioma (N = 2,786) were identified in the SBTR. Of these, 1,502 patients were eligible, having been diagnosed with glioma (n = 768, 51%) or meningioma (n = 734, 49%) and completed at least one of three patient-reported questionnaires during the first year after surgery: PREM survey (n = 1,054), and/or PROM at 3 months (n = 651) and/or 12 months (n = 938). At 3 or 12 months (N=1110), 462 patients (42%) reported receiving rehabilitation, 297 (64%) directly after surgery and 165 (36%) ongoing one year later. Among those 648 (58%) not offered rehabilitation 138 (21%) expressed a need for it, while 510 (79%) reported no need. The most frequently consulted rehabilitation professionals were occupational therapists (n = 358, 38%) and physiotherapists (n = 341, 36%), followed by social workers (n = 251, 27%), speech and language therapists (n = 124, 13%), psychologists (n = 93, 10%), and dieticians (n = 62, 7%). A total of 234 patients (25%) reported no contact with any rehabilitation professional. One year after surgery, half of the patients 506 (50%) reported having a written care plan, and among them, 288 (30%) also had a documented plan for rehabilitation. 189 (20%) had returned to work, 96 (10%) worked part-time and 201 (21%) were on full-time sick leave while 385 (41%) were retired. 66 (8%) reported not working, for example studying. CONCLUSION This study captures the patient perspectives on access, use and needs for rehabilitation after a diagnosis of glioma or meningioma. To further explore rehabilitation service provision, we are cross-referencing with the Swedish National Quality Registry for Rehabilitation and conducting a national survey. Updated results will be presented.