P107 Cultural differences in care for parents with a neurodegenerative disorder
Abstract Introduction This study investigated differences in opinions about neurodegenerative disorders (NDD) in countries with large populations and expanded access to healthcare. Methods A 5-point Likert scale survey assessed opinions of 30–59-year-olds, pertaining to their parents and NDD conditions. 100 surveys, translated into native languages, were acquired in eight developed countries. Positive (somewhat- or strongly-agree) vs. other responses, sex, and country were submitted to logistic regression and Chi-squared analyses. Results “It is important for me to know if my parent has a risk for developing a NDD condition in the future, even if nothing can be currently done to prevent or cure those diseases” had higher positive responses in Australia (92%) compared to Germany (74%) and the USA (78%). “I believe that knowing about my parent’s risk for developing a NDD condition will help me assist in the planning of their future” had higher number of positive responses in Australia (91%) versus Japan (70%), Germany (76%), Italy (80%) and UK (80%). “If my parent(s) was found to be at risk for a NDD condition, I would want to learn more about medications and adaptive therapies that could delay onset” was responded to more positively in Australia (92%), Canada (78%), France (87%), Germany (78%), Italy (88%), UK (88%), and USA (81%) versus Japan (60%). Conclusions Australians responded more positively to questions related to care of a parent with a NDD disorder. These findings suggest cultural differences that could influence education and support systems requirements for sleep medicine providers and NDD patients.
Authors
- TC Neylan
- Corinne E. Fischer (ORCID: https://orcid.org/0000-0002-1047-0167)
- Christine M. Walsh
- Chris Berka (ORCID: https://orcid.org/0000-0003-1566-2907)
- Daniel J. Levendowski (ORCID: https://orcid.org/0000-0003-1278-6349)
- Simon J.G. Lewis (ORCID: https://orcid.org/0000-0002-4093-7071)
- Erik K. St. Louis (ORCID: https://orcid.org/0000-0002-2833-8826)
Institutions
- St. Michael's Hospital (CA)
- Mayo Clinic (US)
- Vita-Salute San Raffaele University (IT)
- Mayo Clinic in Arizona (US)
- St Michael's Hospital (GB)
- Advanced Brain Monitoring (United States) (US)
- University of San Francisco (US)
- Macquarie University (AU)
Publication Details
- Journal
- SLEEP Advances
- Published
- 2025-10-01
- DOI
- https://doi.org/10.1093/sleepadvances/zpaf053.167
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00