Siblings of young children with congenital heart disease: parent perspectives from a crowdsourcing study
Parents described specific ways that CHD impacts their heart-healthy children, including their psychosocial functioning, role in the family, and support from the community. Findings highlight the need for family-centered care in CHD, including screening to identify siblings at risk for psychosocial difficulties and provision of appropriate supports to meet sibling and family needs.
Authors
- Melissa A. Alderfer (ORCID: https://orcid.org/0000-0002-0508-1693)
- Linda G. McWhorter (ORCID: https://orcid.org/0000-0002-4546-0591)
- Sarah E. Wawrzynski (ORCID: https://orcid.org/0000-0003-2756-2583)
- Erica Sood (ORCID: https://orcid.org/0000-0001-8817-4213)
- Anne E. Kazak (ORCID: https://orcid.org/0000-0003-0553-0855)
- Jennifer Christofferson (ORCID: https://orcid.org/0000-0003-3892-9424)
- Abigail C. Demianczyk
- Christina M. Amaro (ORCID: https://orcid.org/0000-0003-2194-111X)
Institutions
- Children's Hospital of Philadelphia (US)
- Thomas Jefferson University (US)
- Nemours Children's Health System (US)
Publication Details
- Journal
- Journal of Pediatric Psychology
- Published
- 2025-09-16
- DOI
- https://doi.org/10.1093/jpepsy/jsaf089
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 0.00