Exploring attitudes towards intimate partner violence research and intervention among people with cystic fibrosis

Background: Intimate partner violence (IPV) is a pervasive public health issue, yet little is known about its impact on individuals with cystic fibrosis (CF), a population that faces complex health challenges. This study aims to explore perspectives on IPV-related research and clinical intervention among people with CF (pwCF) and their family members. Methods: A survey was distributed via the Cystic Fibrosis Foundation’s Community Voice platform. Data were analysed via descriptive statistics and thematic analysis. Results: Fifty-four individuals completed the survey. While most (59.1 per cent) find studying IPV in CF to be either ‘extremely’ or ‘very’ important, most (61.4 per cent) had never been screened in outpatient healthcare settings, suggesting a critical gap in care. Key barriers to pwCF leaving abusive relationships included financial and insurance-related dependence as well as self-esteem concerns. Conclusion: IPV may be an overlooked issue in CF care despite its significant health consequences. Given frequent healthcare interactions, integrating structured IPV screening and support into CF care could be beneficial and well-received. Findings underscore the need for CF-specific IPV research and tailored intervention strategies.