Family-Perceived Quality of End-of-Life Care and Quality of Dying Among Dutch Nursing Home Residents With Dementia: 2005–2024 Trends
Over 18 years, trends in family-perceived quality of EOL care for people with dementia have improved. However, the quality of dying diverged, and 2 subscales changed in opposite directions with a significant decline in the well-being subscale and an increase in the dying symptoms subscale. Future research should explore well-being and expectations over time of what constitutes a "good death" in dementia and palliative care interventions to effectively improve quality of dying.
Authors
- Naomi Schotvanger
- Jenny Theodora van der Steen (ORCID: https://orcid.org/0000-0002-9063-7501)
- Jesper M. A. Biesmans (ORCID: https://orcid.org/0000-0002-5228-2674)
- Sascha Bolt (ORCID: https://orcid.org/0000-0003-1570-0432)
- Maartje S. Klapwijk (ORCID: https://orcid.org/0000-0002-4961-2978)
- Judith Meijers (ORCID: https://orcid.org/0000-0002-5399-6513)
Institutions
- Radboud University Nijmegen (NL)
- Zuyd University of Applied Sciences (NL)
- Tilburg University (NL)
- Leiden University Medical Center (NL)
- Radboud University Medical Center (NL)
- Maastricht University (NL)
- Department of Health (TW)
- Department of Health Services (NP)
Publication Details
- Journal
- Journal of the American Medical Directors Association
- Published
- 2025-10-20
- DOI
- https://doi.org/10.1016/j.jamda.2025.105888
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00