The challenges and opportunities of personal health data tracking and sharing amongst people living with HIV in the United Kingdom and their specialist healthcare providers
Our findings highlight the opportunities and challenges of tracking and sharing PHD in the context of HIV, especially in view of increasing remote and digital clinical care throughout the National Health Service. Opportunities included enhanced autonomy and control over health and facilitating improved relationships and communication between SUs and HCPs. However, these opportunities must be considered in the context of constraints of service delivery and potential burden to SUs and HCPs, as well as key challenges regarding privacy.
Authors
- Emily Jay Nicholls (ORCID: https://orcid.org/0000-0003-2061-8361)
- Jo Gibbs (ORCID: https://orcid.org/0000-0001-5696-0260)
- Alexander Maddams (ORCID: https://orcid.org/0000-0002-1445-8042)
- Karen C Lloyd (ORCID: https://orcid.org/0000-0002-6310-6836)
- Shema Tariq (ORCID: https://orcid.org/0000-0001-9802-7727)
- Abigail Durrant (ORCID: https://orcid.org/0000-0003-4752-5376)
- Katarina Hoernke (ORCID: https://orcid.org/0000-0002-4825-980X)
- Caroline Claisse (ORCID: https://orcid.org/0000-0003-4002-6136)
Institutions
- University of East Anglia (GB)
- Central and North West London NHS Foundation Trust (GB)
- University College London (GB)
- Newcastle University (GB)
Publication Details
- Journal
- Digital Health
- Published
- 2025-05-01
- DOI
- https://doi.org/10.1177/20552076251383420
- Primary Topic
- Data Analysis and Archiving
- Type
- article
- Field-Weighted Citation Impact
- 0.00