Psychiatry of intellectual disability in the UK: looking back, moving forward

In this century, psychiatry for people with intellectual disability in the United Kingdom has undergone profound shifts, shaped by deinstitutionalization, legislative reform, a focus on psychotropic reduction, an increasing recognition of the premature mortality, and a growing recognition of rights-based, person-centred approaches. Despite progress, entrenched challenges remain, including fragmented services, inconsistent outcome measures, inappropriate psychotropic prescribing, and health inequalities. The coming decades promise transformative opportunities through genomics, digital health, and personalized interventions, through integrated management of co-occurring conditions, but risk deepening inequities if inclusion is not intentional. This paper synthesizes past developments, including the impact of abuse scandals, legal reforms, medication optimization initiatives, recognition of premature mortality, outcome measurement advances, and evolving care models. It explores future trajectories, focusing on genomic medicine, technology, holistic care, and patient and carer co-production, emphasizing the role of shared genetic vulnerabilities and digital phenotyping in early detection and integrated care. By reflecting on past shortcomings and future potential, we propose an agenda that centres rights, equity, and evidence, ensuring that people with intellectual disability are not left behind in the next era of psychiatric innovation and equally that psychiatry remains integral to the welfare of people with intellectual disability.

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Publication Details

Journal
International Review of Psychiatry
Published
2025-09-29
DOI
https://doi.org/10.1080/09540261.2025.2564166
Citations
2
Primary Topic
Mental Health and Psychiatry
Type
article
Field-Weighted Citation Impact
34.53
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article

Psychiatry of intellectual disability in the UK: looking back, moving forward

Regi Alexander, Ken Courtenay, Samuel Tromans, Indermeet Sawhney et al.
2 citations
International Review of Psychiatry
Mental Health and Psychiatry
34.53
article

Psychiatry of intellectual disability in the UK: looking back, moving forward

Regi Alexander, Ken Courtenay, Samuel Tromans, Indermeet Sawhney, Richard Laugharne, Ashok Roy, Rohit Shankar
article en
2 citations

Abstract

In this century, psychiatry for people with intellectual disability in the United Kingdom has undergone profound shifts, shaped by deinstitutionalization, legislative reform, a focus on psychotropic reduction, an increasing recognition of the premature mortality, and a growing recognition of rights-based, person-centred approaches. Despite progress, entrenched challenges remain, including fragmented services, inconsistent outcome measures, inappropriate psychotropic prescribing, and health inequalities. The coming decades promise transformative opportunities through genomics, digital health, and personalized interventions, through integrated management of co-occurring conditions, but risk deepening inequities if inclusion is not intentional. This paper synthesizes past developments, including the impact of abuse scandals, legal reforms, medication optimization initiatives, recognition of premature mortality, outcome measurement advances, and evolving care models. It explores future trajectories, focusing on genomic medicine, technology, holistic care, and patient and carer co-production, emphasizing the role of shared genetic vulnerabilities and digital phenotyping in early detection and integrated care. By reflecting on past shortcomings and future potential, we propose an agenda that centres rights, equity, and evidence, ensuring that people with intellectual disability are not left behind in the next era of psychiatric innovation and equally that psychiatry remains integral to the welfare of people with intellectual disability.

International Review of Psychiatry
University of Hertfordshire (GB), North East London NHS Foundation Trust (GB), Hertfordshire Partnership University NHS Foundation Trust (GB), Coventry and Warwickshire Partnership NHS Trust (GB), Faculty of Public Health (GB), Cornwall Partnership NHS Foundation Trust (GB), Leicestershire Partnership NHS Trust (GB), University of Plymouth (GB)
Openalex Percentile: Top 1%
Mental Health and Psychiatry
34.53
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