Beyond the Silence: How Men Navigate Infertility Through Digital Communities and Data Sharing
Men experiencing infertility face unique challenges navigating Traditional Masculinity Ideologies that discourage emotional expression and help-seeking. This study examines how Reddit’s r/maleinfertility community helps overcome these barriers through digital support networks. Using topic modeling (115 topics), network analysis (11 micro-communities), and time-lagged regression on 11,095 posts and 79,503 comments from 8,644 users, we found the community functions as a hybrid space: informal diagnostic hub, therapeutic commons, and governed institution. Medical advice dominates discourse (63.3%), while emotional support (7.4%) and moderation (29.2%) create essential infrastructure. Sustained engagement correlates with actionable guidance and affiliation language, not emotional processing. Network analysis revealed structurally cohesive but topically diverse clusters without echo chamber characteristics. Cross-posters (20% of users) who bridge r/maleinfertility and the gender-mixed r/infertility community serve as navigators and mentors, transferring knowledge between spaces. These findings inform trauma-informed design for stigmatized health communities, highlighting role-aware systems and navigation support.
Authors
- Tawfiq Ammari (ORCID: https://orcid.org/0000-0002-1920-1625)
- Zarah Khondoker
- Nikki Roda
Institutions
- Rutgers, The State University of New Jersey (US)
- Johns Hopkins University (US)
- University at Buffalo, State University of New York (US)
Publication Details
- Published
- 2026-04-13
- DOI
- https://doi.org/10.1145/3772318.3790887
- Primary Topic
- Reproductive Health and Technologies
- Type
- article
- Field-Weighted Citation Impact
- 0.00