PORTRESS – the PORTuguese Reuma.pt registry for Sjögren’S disease
PORTRESS is a web-based SjD registry facilitating efficient nationwide data storage. It enables research, trial recruitment, and a comprehensive longitudinal view of patients' evolution. Although systemic activity improved over follow-up, symptom burden worsened when compared to baseline, underlining a major unmet need in SjD.
Authors
- João Paulo Dias (ORCID: https://orcid.org/0000-0003-0884-8746)
- Vasco C. Romão (ORCID: https://orcid.org/0000-0002-5603-9436)
- F. Cunha Santos (ORCID: https://orcid.org/0000-0003-4714-0353)
- Filipe Barcelos
- Margarida Oliveira (ORCID: https://orcid.org/0009-0001-2128-1898)
- Roberto Pereira da Costa (ORCID: https://orcid.org/0009-0006-4384-8660)
- Ana Valido (ORCID: https://orcid.org/0000-0001-5412-2642)
- João Eurico Fonseca (ORCID: https://orcid.org/0000-0003-1432-3671)
- Maria João Gonçalves (ORCID: https://orcid.org/0000-0001-6461-9142)
- Matilde Bandeira (ORCID: https://orcid.org/0000-0001-8312-4532)
- Ana Isabel Maduro (ORCID: https://orcid.org/0000-0003-3461-4257)
- Paulo Almeida Pereira (ORCID: https://orcid.org/0000-0002-3941-8274)
- Luísa Brites (ORCID: https://orcid.org/0000-0002-0234-4902)
- Manuel António (ORCID: https://orcid.org/0000-0003-4936-0528)
- Cláudia P. Oliveira (ORCID: https://orcid.org/0000-0002-2848-417X)
- D. B Raimundo
- Mariana Luís
- Nikita Khmelinskii (ORCID: https://orcid.org/0000-0001-6358-7388)
- Ana Isabel Vieira (ORCID: https://orcid.org/0000-0002-7908-4889)
- Catarina Tenazinha (ORCID: https://orcid.org/0000-0002-5427-5267)
- Mariana Emília Santos (ORCID: https://orcid.org/0009-0000-4087-4202)
- Ana Catarina Duarte (ORCID: https://orcid.org/0000-0001-6128-2425)
- Ana Rita Lopes (ORCID: https://orcid.org/0000-0002-8939-1479)
- Anita Cunha
- Ana Catarina Moniz
- Portress Reuma Pt Task Force
Institutions
- Guardia Civil (ES)
- Administração Regional de Saúde de Lisboa e Vale do Tejo (PT)
- Instituto Português de Malacologia (PT)
- Centro Hospitalar de Lisboa Ocidental (PT)
- Sjögren’s Society of Canada (CA)
- Secretaria da Saúde (BR)
- University Legal Services (US)
- Digital Video (Italy) (IT)
- Câmara Municipal de Almada (PT)
- Clinical Academic Center of Braga (PT)
- Instituto Português de Reumatologia
- University of Aveiro (PT)
- Lourdes University (US)
- University of Minho (PT)
Publication Details
- Journal
- ARP Rheumatology
- Published
- 2025-09-28
- DOI
- https://doi.org/10.63032/bkra9238
- Citations
- 1
- Primary Topic
- Salivary Gland Disorders and Functions
- Type
- article
- Field-Weighted Citation Impact
- 1.16