Evaluation of a web-based decision aid for couples at risk of transmitting a genetic disease: a randomized controlled trial
The decision aid outperforms the standardized information page in preparation for decision-making and overall appreciation. Future research should explore how to improve tailoring of information tools to individual characteristics and identify which couples benefit most from concise versus comprehensive information at different decision-making stages.
Authors
- Emilia K. Bijlsma (ORCID: https://orcid.org/0000-0002-2443-3906)
- Hein de Vries (ORCID: https://orcid.org/0000-0002-3640-2517)
- Cecile P. E. Ottenheim
- Liesbeth van Osch (ORCID: https://orcid.org/0000-0002-8157-1870)
- Sara Joosten
- Kyra E. Stuurman (ORCID: https://orcid.org/0000-0002-0257-2059)
- Yil Severijns (ORCID: https://orcid.org/0000-0002-8138-4741)
- Nicole Corsten‐Janssen (ORCID: https://orcid.org/0000-0002-9438-2374)
- Christine de Die‐Smulders (ORCID: https://orcid.org/0000-0003-3485-6870)
- Elisa J. F. Houwink (ORCID: https://orcid.org/0000-0002-9927-7266)
- Elsbeth H. van Vliet‐Lachotzki
- Sander M. J. van Kuijk (ORCID: https://orcid.org/0000-0003-2796-729X)
- Maria B. Tan-Sindhunata
- Klazina Danette Lichtenbelt
- Hubertina Catharina Johanna Scheepers
- Gertruda Dorothea Emma Maria van der Weijden
Institutions
- Leiden University (NL)
- University Medical Center Groningen (NL)
- Radboud University Nijmegen (NL)
- Genetic Alliance (US)
- Maastricht University Medical Centre (NL)
- Erasmus MC (NL)
- Radboud University Medical Center (NL)
- University Medical Center Utrecht (NL)
- Maastricht University (NL)
- Mayo Clinic in Arizona (US)
- Amsterdam University Medical Centers (NL)
- Open University of the Netherlands (NL)
- University of Amsterdam (NL)
- Erasmus University Rotterdam (NL)
Publication Details
- Journal
- Reproductive BioMedicine Online
- Published
- 2025-09-27
- DOI
- https://doi.org/10.1016/j.rbmo.2025.105273
- Primary Topic
- Reproductive Health and Technologies
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- ZonMw