Long-term morbidity and quality of life in survivors of Stevens-Johnson syndrome/toxic epidermal necrolysis spectrum
This is one of the largest long-term studies following an SJS/TEN reaction that reports long-term survey-based sequelae and adds to the understanding of SJS/TEN as a condition with chronic complications long beyond the acute reaction. We report significant long-term life impacts among survivors of SJS/TEN in the USA. Additional follow-up and long-term care of this patient population is of the utmost importance.
Authors
- Michelle Goh (ORCID: https://orcid.org/0000-0001-8063-8482)
- Misha Rosenbach
- Aaron M. Drucker (ORCID: https://orcid.org/0000-0002-7388-9475)
- Elizabeth Ergen (ORCID: https://orcid.org/0000-0002-4748-5936)
- Mary‐Margaret Chren (ORCID: https://orcid.org/0000-0001-8009-7014)
- Robert G. Micheletti (ORCID: https://orcid.org/0000-0003-2517-7008)
- Benjamin Harris Kaffenberger (ORCID: https://orcid.org/0000-0001-8079-0011)
- Sharon Phillips (ORCID: https://orcid.org/0000-0002-4230-4454)
- Roni P. Dodiuk‐Gad (ORCID: https://orcid.org/0000-0003-2168-3798)
- Michelle Martin‐Pozo (ORCID: https://orcid.org/0000-0002-1526-9569)
- Elizabeth Williams (ORCID: https://orcid.org/0000-0003-3255-4465)
- Aili Yu (ORCID: https://orcid.org/0000-0001-9652-8050)
- April O’Connor
- Elizabeth J Phillips
- Kelby Mahan
Institutions
- Murdoch University (AU)
- University of Toronto (CA)
- Women's College Hospital (CA)
- The Ohio State University Wexner Medical Center (US)
- Rappaport Family Institute for Research in the Medical Sciences (IL)
- Alfred Health (AU)
- Austin Health (AU)
- University of Tennessee at Knoxville (US)
- University of Pennsylvania (US)
- Vanderbilt University Medical Center (US)
Publication Details
- Journal
- British Journal of Dermatology
- Published
- 2025-09-25
- DOI
- https://doi.org/10.1093/bjd/ljaf380
- Primary Topic
- Drug-Induced Adverse Reactions
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Psoriasis Foundation
- National Eczema Association
- Eli Lilly and Company
- Biogen
- Vanderbilt University
- Canadian Dermatology Foundation
- Novocure
- Vanderbilt University Medical Center
- InflaRx
- National Institutes of Health
- Medical Research Council
- National Health and Medical Research Council