The neuromodulation registry survey: A web-based survey to identify and describe characteristics of European medical patient registries for neuromodulation therapies in chronic pain treatment

We identified 27 centers utilizing neuromodulation registries for chronic pain treatment, with 23 providing detailed data. Although the survey's limitation is its findings are not generalizable to all registries, the findings offer key insights for the establishment and growth of registries in neuromodulation. Registries primarily aim to investigate the clinical and patient-reported outcomes, though variability in other clinical data collection remains a challenge for benchmarking and guideline adherence. Significant financial and organizational hurdles exist, which can be addressed through cooperative initiatives.