The IMPACT Survey: The Humanistic Impact of Caring for an Individual with Osteogenesis Imperfecta
Our results suggest that caring for individuals with OI might have considerable impacts on QoL and worries. The level of impact may be predicted by caregiver age and care recipient OI severity, age, and clinical SSEs.
Authors
- Frank Rauch (ORCID: https://orcid.org/0000-0002-6261-0360)
- Alysia Battersby (ORCID: https://orcid.org/0000-0002-0715-6935)
- Tracy Hart (ORCID: https://orcid.org/0000-0003-4967-9272)
- Taco van Welzenis
- Oliver Semler (ORCID: https://orcid.org/0000-0003-0029-7556)
- Samantha Prince (ORCID: https://orcid.org/0000-0003-1879-0293)
- Cathleen Raggio
- Lena Lande Wekre (ORCID: https://orcid.org/0000-0001-9838-2518)
- Heather Mulhall
- Ingunn Westerheim
Institutions
- Hospital for Special Surgery (US)
- University of Cologne (DE)
- Sunnaas sykehus (NO)
- Picker Institute Europe (GB)
- Osteogenesis Imperfecta Foundation (US)
- McGill University (CA)
Publication Details
- Journal
- Advances in Therapy
- Published
- 2025-09-26
- DOI
- https://doi.org/10.1007/s12325-025-03372-8
- Citations
- 1
- Primary Topic
- Connective tissue disorders research
- Type
- article
- Field-Weighted Citation Impact
- 1.82
Funders
- Mereo BioPharma