Predictors of Consent to Online and Genetic Research among Adults on the MindCrowd Cognitive Health Platform
Despite previous research demonstrating that black and Hispanic MindCrowd participants were more willing to be contacted for future research than white participants, findings from this study suggest hesitancy to consent to online cognitive aging research and genetic testing. A more intentional approach may be necessary to retain MindCrowd participants from underrepresented communities in cognitive research studies.
Authors
- Matthew J. Huentelman (ORCID: https://orcid.org/0000-0001-7390-9918)
- Carol A. Barnes (ORCID: https://orcid.org/0000-0001-8122-9007)
- David W. Coon (ORCID: https://orcid.org/0000-0002-5224-3886)
- William J. Degnan (ORCID: https://orcid.org/0000-0001-7286-9790)
- Chen Zhao (ORCID: https://orcid.org/0000-0001-7270-7580)
- Azmat Sidhu (ORCID: https://orcid.org/0009-0004-1207-5082)
- María del Carmen Márquez Carrasco (ORCID: https://orcid.org/0000-0003-2016-1664)
- Katherine Ellingson (ORCID: https://orcid.org/0000-0001-7624-312X)
- Megan Johnson (ORCID: https://orcid.org/0000-0002-4245-0283)
- Dwight E. Lynn
- Grace Marie Leito
- Julia G. Saborio
Institutions
- Translational Genomics Research Institute (US)
- University of Arizona (US)
- Emory University (US)
- Center for Innovation (US)
- Arizona State University (US)
Publication Details
- Journal
- Gerontology
- Published
- 2025-09-25
- DOI
- https://doi.org/10.1159/000548419
- Citations
- 1
- Primary Topic
- Health Literacy and Information Accessibility
- Type
- article
- Field-Weighted Citation Impact
- 2.82