Patient-Centered Leadership and Co-Design of Services for Breast Cancer Program in Nicaragua

<b>Introduction:</b> The direct participation and leadership of breast cancer patients in program design and implementation can facilitate a nuanced understanding of how individuals perceive and address challenges within their unique contexts. To achieve truly patient-centered care, patients must be formally integrated as a critical component of multidisciplinary healthcare teams. <b>Materials and Methods:</b> A descriptive, retrospective observational study was conducted. A group of 122 patients ("Breast Unit") was formed and actively implemented initiatives related to education, prevention, peer support, co-design, and institutional guidance over two years. A second group, consisting of 466 individuals diagnosed with and treated for breast cancer, served as the Beneficiary Patient group. From the "Breast Unit", 93 patients responded to a structured interview about their experience. <b>Results:</b> The Breast Unit group developed strong leadership skills and collaborated with the multidisciplinary healthcare team to improve care workflows, contributing at both strategic and operational levels. In total, 97% of patients received their first oncology evaluation within 48 h, ensuring timely intervention. The percentage of early-stage breast cancer diagnoses improved, from 67% to 76%. Furthermore, patients who participated in the support group reported no new diagnoses of clinical depression in the past two years. <b>Conclusions:</b> By elevating the patient voice into a substantive role within leadership, strategic planning, and co-design initiatives, healthcare systems can advance a more equitable, effective, and sustainable model of care. Integrating patient contributions with multidisciplinary collaboration is essential for optimizing care processes, improving clinical outcomes. It strengthens the person-centered culture, impacting on a personal and organizational level.

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Publication Details

Journal
International Journal of Environmental Research and Public Health
Published
2025-09-25
DOI
https://doi.org/10.3390/ijerph22101482
Primary Topic
Patient-Provider Communication in Healthcare
Type
article
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article

Patient-Centered Leadership and Co-Design of Services for Breast Cancer Program in Nicaragua

A Avilés, Karen Herrera, Claudio Maldonado Rivera, María Esther Suárez García et al.
International Journal of Environmental Research and Public Health
Patient-Provider Communication in Healthcare
article

Patient-Centered Leadership and Co-Design of Services for Breast Cancer Program in Nicaragua

A Avilés, Karen Herrera, Claudio Maldonado Rivera, María Esther Suárez García, E. García, Gonzalo Granados
article en

Abstract

<b>Introduction:</b> The direct participation and leadership of breast cancer patients in program design and implementation can facilitate a nuanced understanding of how individuals perceive and address challenges within their unique contexts. To achieve truly patient-centered care, patients must be formally integrated as a critical component of multidisciplinary healthcare teams. <b>Materials and Methods:</b> A descriptive, retrospective observational study was conducted. A group of 122 patients ("Breast Unit") was formed and actively implemented initiatives related to education, prevention, peer support, co-design, and institutional guidance over two years. A second group, consisting of 466 individuals diagnosed with and treated for breast cancer, served as the Beneficiary Patient group. From the "Breast Unit", 93 patients responded to a structured interview about their experience. <b>Results:</b> The Breast Unit group developed strong leadership skills and collaborated with the multidisciplinary healthcare team to improve care workflows, contributing at both strategic and operational levels. In total, 97% of patients received their first oncology evaluation within 48 h, ensuring timely intervention. The percentage of early-stage breast cancer diagnoses improved, from 67% to 76%. Furthermore, patients who participated in the support group reported no new diagnoses of clinical depression in the past two years. <b>Conclusions:</b> By elevating the patient voice into a substantive role within leadership, strategic planning, and co-design initiatives, healthcare systems can advance a more equitable, effective, and sustainable model of care. Integrating patient contributions with multidisciplinary collaboration is essential for optimizing care processes, improving clinical outcomes. It strengthens the person-centered culture, impacting on a personal and organizational level.

International Journal of Environmental Research and Public HealthVol. 22(10)
Military Hospital (PK), Instituto Nicaragüense de Cultura (NI)
Openalex Percentile: Top 59%
Patient-Provider Communication in Healthcare
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