Validation of the Zarit Burden Interview for Polish caregivers of individuals with rare diseases: a multidimensional approach to assessing caregiver burden

Overall, the results confirm that the three-factor model of the ZBI effectively captures caregiver burden and can serve as a reliable tool for assessing the impact of caregiving in diverse populations. The final section provides normative data for the three ZBI subscales among Polish caregivers of individuals with RDs Stratified by sex and age, these norms aid clinicians and researchers in contextualizing individual scores, identifying high-risk groups, and guiding targeted support efforts.