Common data elements for observational studies in ocular toxoplasmosis: a Delphi consensus
This study establishes the first expert-derived standardized dataset requested for reporting OT outcomes, providing a framework to standardize data collection for future observational studies. Adopting these CDEs will enhance data comparability, improve meta-analyses, and strengthen the evidence base for clinical decision-making in OT. Future work will focus on real-world validation and refinement of this dataset.
Authors
- William Rojas‐Carabali (ORCID: https://orcid.org/0000-0002-9976-8989)
- Kalpana Babu
- Zheng Xian Thng (ORCID: https://orcid.org/0000-0003-3275-7537)
- Edmund Yik Kong Tsui (ORCID: https://orcid.org/0000-0001-7532-9191)
- Rina La Distia Nora (ORCID: https://orcid.org/0000-0002-7026-5341)
- Carlos Cifuentes‐González (ORCID: https://orcid.org/0000-0002-2703-0977)
- Quan Nguyen (ORCID: https://orcid.org/0000-0001-8937-5121)
- Kerry Goetz (ORCID: https://orcid.org/0000-0002-9821-7704)
- Jorge Enrique Gómez‐Marín (ORCID: https://orcid.org/0000-0001-6472-3329)
- João M. Furtado (ORCID: https://orcid.org/0000-0003-2490-5747)
- Xin Wei (ORCID: https://orcid.org/0000-0001-8865-1956)
- André Luiz Land Curi (ORCID: https://orcid.org/0000-0002-2764-4047)
- Marcelo Rudzinski
- Justine R. Smith (ORCID: https://orcid.org/0000-0002-4756-5493)
- Germán Mejía‐Salgado (ORCID: https://orcid.org/0000-0002-1241-0715)
- Ariel Schlaen (ORCID: https://orcid.org/0000-0003-1202-8660)
- Alfredo Adán (ORCID: https://orcid.org/0000-0002-0849-8814)
- Cristhian A. Urzúa (ORCID: https://orcid.org/0000-0001-5325-0415)
- Alejandra de‐la‐Torre (ORCID: https://orcid.org/0000-0003-0684-1989)
- Sally L. Baxter (ORCID: https://orcid.org/0000-0002-5271-7690)
- Vishali Gupta (ORCID: https://orcid.org/0000-0001-8216-4620)
- Ranju Kharel Sitaula (ORCID: https://orcid.org/0000-0001-8624-4433)
- Justus G. Garweg (ORCID: https://orcid.org/0000-0003-3973-5082)
- Cristina Muccioli (ORCID: https://orcid.org/0000-0002-6870-6187)
- Heloísa Nascimento (ORCID: https://orcid.org/0000-0003-0315-1317)
- Padmamalini Mahendradas (ORCID: https://orcid.org/0000-0002-6137-8870)
- Ikhwanuliman Putera (ORCID: https://orcid.org/0000-0002-9350-5133)
- Sivaraman Balamurugan
- Cláudio Silveira (ORCID: https://orcid.org/0000-0003-1445-6386)
- Mark Westcott (ORCID: https://orcid.org/0000-0001-9516-1576)
- Rubens Belfort
- Su Ling Ho
- Maria Vittoria Cicinelli
- Jyotirmay Biswas
- Sofia Androudi
- Rupesh Agrawal
Institutions
- Sankara Nethralaya (IN)
- National Institutes of Health (US)
- Moorfields Eye Hospital NHS Foundation Trust (GB)
- Universidad del Desarrollo (CL)
- University of Quindío (CO)
- University of Thessaly (GR)
- Vita-Salute San Raffaele University (IT)
- Tribhuvan University (NP)
- Flinders University (AU)
- University of Pittsburgh (US)
- Nanyang Technological University (SG)
- Universidade de São Paulo (BR)
- National University of Misiones (AR)
- Universidad Autónoma de Bucaramanga (CO)
- Barts Health NHS Trust (GB)
- Singapore National Eye Center (SG)
- Aravind Eye Hospital (IN)
- L V Prasad Eye Institute (IN)
- Erasmus MC (NL)
- Tan Tock Seng Hospital (SG)
- University of California San Diego (US)
- Hospital Universitario Austral (AR)
- Hospital Clínic de Barcelona (ES)
- Singapore Eye Research Institute (SG)
- Narayana Nethralaya (IN)
- Hospital de Clínicas "José de San Martín" (AR)
- Duke-NUS Medical School (SG)
- Lindenhofspital (CH)
- National Eye Institute (US)
- Instituto Evandro Chagas (BR)
- Moorfields Eye Hospital (GB)
- Istituti di Ricovero e Cura a Carattere Scientifico (IT)
- Rumah Sakit Umum Pusat Nasional Dr. Cipto Mangunkusumo (ID)
- Istituto di Ricovero e Cura a Carattere Scientifico San Raffaele (IT)
- University College London (GB)
- Post Graduate Institute of Medical Education and Research (IN)
- Fundação Oswaldo Cruz (BR)
- Smith-Kettlewell Eye Research Institute (US)
- University of Chile (CL)
- Universidade Federal de São Paulo (BR)
- Universidad del Rosario (CO)
- Stanford University (US)
Publication Details
- Journal
- Journal of Ophthalmic Inflammation and Infection
- Published
- 2025-09-24
- DOI
- https://doi.org/10.1186/s12348-025-00525-2
- Citations
- 1
- Primary Topic
- Ocular Diseases and Behçet’s Syndrome
- Type
- article
- Field-Weighted Citation Impact
- 1.71
Funders
- Nanomaterials Microdevices Research Center, Osaka Institute of Technology
- Medical Research Council
- National Medical Research Council