Engaging Children and Young People in Pediatric Palliative Care Research: A Scoping Review Protocol of Patient and Public Involvement Practices
This scoping review will provide a comprehensive synthesis of CYP involvement as PPI contributors in PPC research. It will illuminate effective engagement practices, highlight common challenges, and identify critical knowledge gaps. The insights generated from this review will inform the development of more inclusive, ethically grounded, and developmentally appropriate models for involving children and young people as true partners in future palliative care research.
Authors
- Razieh Safarifard (ORCID: https://orcid.org/0000-0002-2333-5044)
- Emma Nicholson (ORCID: https://orcid.org/0000-0002-6652-2552)
- Veronica Lambert (ORCID: https://orcid.org/0000-0003-4396-5462)
- Mary Nevin
- Aima Molati
Institutions
- Dublin City University (IE)
Publication Details
- Journal
- HRB Open Research
- Published
- 2025-09-23
- DOI
- https://doi.org/10.12688/hrbopenres.14236.1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Dublin City University
- Irish Research Council