Engaging Children and Young People in Pediatric Palliative Care Research: A Scoping Review Protocol of Patient and Public Involvement Practices

This scoping review will provide a comprehensive synthesis of CYP involvement as PPI contributors in PPC research. It will illuminate effective engagement practices, highlight common challenges, and identify critical knowledge gaps. The insights generated from this review will inform the development of more inclusive, ethically grounded, and developmentally appropriate models for involving children and young people as true partners in future palliative care research.

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Publication Details

Journal
HRB Open Research
Published
2025-09-23
DOI
https://doi.org/10.12688/hrbopenres.14236.1
Primary Topic
Childhood Cancer Survivors' Quality of Life
Type
article
Field-Weighted Citation Impact
0.00

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article

Engaging Children and Young People in Pediatric Palliative Care Research: A Scoping Review Protocol of Patient and Public Involvement Practices

Razieh Safarifard, Emma Nicholson, Veronica Lambert, Mary Nevin et al.
HRB Open Research
Childhood Cancer Survivors' Quality of Life
article

Engaging Children and Young People in Pediatric Palliative Care Research: A Scoping Review Protocol of Patient and Public Involvement Practices

Razieh Safarifard, Emma Nicholson, Veronica Lambert, Mary Nevin, Aima Molati
article en

Abstract

This scoping review will provide a comprehensive synthesis of CYP involvement as PPI contributors in PPC research. It will illuminate effective engagement practices, highlight common challenges, and identify critical knowledge gaps. The insights generated from this review will inform the development of more inclusive, ethically grounded, and developmentally appropriate models for involving children and young people as true partners in future palliative care research.

HRB Open ResearchVol. 8
Dublin City University (IE)
Dublin City University, Irish Research Council
Openalex Percentile: Top 64%
Childhood Cancer Survivors' Quality of Life
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