The IMPACT Survey: The Economic Impact of Caring for an Individual with Osteogenesis Imperfecta
Our results suggest that caring for an individual with OI may impact caregivers' productivity and finances. The degree of impact may be predicted by caregiver and care recipient age, fracture frequency, and dental problems.
Authors
- Ingunn Westerheim
- Frank Rauch (ORCID: https://orcid.org/0000-0002-6261-0360)
- Melanie Anderson (ORCID: https://orcid.org/0000-0001-9786-1656)
- Tracy Hart (ORCID: https://orcid.org/0000-0003-4967-9272)
- Taco van Welzenis
- Oliver Semler (ORCID: https://orcid.org/0000-0003-0029-7556)
- Samantha Prince (ORCID: https://orcid.org/0000-0003-1879-0293)
- Cathleen Raggio
- Lena Lande Wekre (ORCID: https://orcid.org/0000-0001-9838-2518)
- Heather Mulhall
Institutions
- Hospital for Special Surgery (US)
- University of Cologne (DE)
- Sunnaas sykehus (NO)
- Picker Institute Europe (GB)
- Osteogenesis Imperfecta Foundation (US)
- McGill University (CA)
Publication Details
- Journal
- Advances in Therapy
- Published
- 2025-09-23
- DOI
- https://doi.org/10.1007/s12325-025-03373-7
- Primary Topic
- Connective tissue disorders research
- Type
- article
- Field-Weighted Citation Impact
- 0.00