Healthcare Providers’ Perspectives on the Communication Challenges When Discussing Palliative Sedation: A Qualitative Study Across Eight European Countries

<b>Background/Objectives:</b> Studies have shown that healthcare providers struggle to discuss difficult end-of-life issues, including palliative sedation (PS), with patients and relatives. This qualitative study aimed to evaluate communication challenges related to PS among healthcare providers in eight European countries. <b>Methods:</b> In each country, two clinical settings providing palliative care were selected. Two moral case deliberation (MCD) sessions were conducted, each with 3 to 9 palliative healthcare professionals (HCPs). They discussed patient cases involving PS and refractory symptom management. Sessions were audio-recorded, transcribed, anonymized, and analyzed using a framework analysis. <b>Results:</b> Key issues included core communication values-open, empathetic, and honest dialogue-which were consistent across countries but varied in practice. In The Netherlands, Germany, Belgium, and the UK, communication prioritized patient autonomy through timely discussions and family dialogue. In Spain and Italy, family-centered communication approaches predominated, while in Romania and Hungary, tendencies for selective disclosure were also evident, along with delegated decision-making and complex family dynamics. Certain challenges reflected professional experience rather than national culture. Nurses mediated across contexts, while terminology surrounding palliative sedation remained a source of ambiguity. <b>Conclusions:</b> This is the first study to present HCPs' perceptions of communication issues related to PS across Europe. Despite variations between settings, consistently open dialogue among patients, families, and HCPs emerged as the most valued element. These findings highlight the need to better understand how end-of-life communication about PS varies in practice and underscore the importance of considering healthcare providers' real-world experiences to improve communication with patients and families.

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Journal
Journal of Clinical Medicine
Published
2025-09-21
DOI
https://doi.org/10.3390/jcm14186653
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
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article

Healthcare Providers’ Perspectives on the Communication Challenges When Discussing Palliative Sedation: A Qualitative Study Across Eight European Countries

Claudio Adile, Csilla Busa, Camelia Ancuţa, Daniela Moşoiu et al.
Journal of Clinical Medicine
Palliative Care and End-of-Life Issues
article

Healthcare Providers’ Perspectives on the Communication Challenges When Discussing Palliative Sedation: A Qualitative Study Across Eight European Countries

Claudio Adile, Csilla Busa, Camelia Ancuţa, Daniela Moşoiu, Rocío Rojí, Ian Koper, Nancy Preston, Ágnes Csikós, Éva Pozsgai, Sheila Payne, Jeroen G. J. Hasselaar, Michaël Van der Elst, Holger Brunsch
article en

Abstract

<b>Background/Objectives:</b> Studies have shown that healthcare providers struggle to discuss difficult end-of-life issues, including palliative sedation (PS), with patients and relatives. This qualitative study aimed to evaluate communication challenges related to PS among healthcare providers in eight European countries. <b>Methods:</b> In each country, two clinical settings providing palliative care were selected. Two moral case deliberation (MCD) sessions were conducted, each with 3 to 9 palliative healthcare professionals (HCPs). They discussed patient cases involving PS and refractory symptom management. Sessions were audio-recorded, transcribed, anonymized, and analyzed using a framework analysis. <b>Results:</b> Key issues included core communication values-open, empathetic, and honest dialogue-which were consistent across countries but varied in practice. In The Netherlands, Germany, Belgium, and the UK, communication prioritized patient autonomy through timely discussions and family dialogue. In Spain and Italy, family-centered communication approaches predominated, while in Romania and Hungary, tendencies for selective disclosure were also evident, along with delegated decision-making and complex family dynamics. Certain challenges reflected professional experience rather than national culture. Nurses mediated across contexts, while terminology surrounding palliative sedation remained a source of ambiguity. <b>Conclusions:</b> This is the first study to present HCPs' perceptions of communication issues related to PS across Europe. Despite variations between settings, consistently open dialogue among patients, families, and HCPs emerged as the most valued element. These findings highlight the need to better understand how end-of-life communication about PS varies in practice and underscore the importance of considering healthcare providers' real-world experiences to improve communication with patients and families.

Journal of Clinical MedicineVol. 14(18)
Radboud University Nijmegen (NL), University Hospital Bonn (DE), Radboud University Medical Center (NL), Transylvania University of Brașov (RO), Navarre Institute of Health Research (ES), Clinica Universidad de Navarra (ES), La Maddalena (IT), Lancaster University (GB), University of Pecs (HU), KU Leuven (BE)
Openalex Percentile: Top 65%
Palliative Care and End-of-Life Issues
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