Nonseizure symptoms and broader seizure impacts in patients with Dravet syndrome and Lennox–Gastaut syndrome in clinical practice settings: Results from a multinational survey
We asked doctors and caregivers to tell us about the symptoms that patients with Dravet syndrome and Lennox-Gastaut syndrome have. We asked how the symptoms affect the lives of the patients as well as the caregivers. We found that seizures have a big impact on the health and well-being of patients and caregivers. We also found that other symptoms not caused by seizures have a big impact on patients and their caregivers.
Authors
- Drishti Shah (ORCID: https://orcid.org/0000-0002-5866-7743)
- Arturo Benitez (ORCID: https://orcid.org/0000-0001-6023-9871)
- Dennis Dlugos (ORCID: https://orcid.org/0000-0003-3088-7645)
- Vicente Villanueva (ORCID: https://orcid.org/0000-0003-2080-8042)
- Stevie Olsen (ORCID: https://orcid.org/0000-0002-8911-0155)
- Yasmin Taylor (ORCID: https://orcid.org/0000-0003-4454-5013)
- Hannah Connolly
- Sheng Lai (ORCID: https://orcid.org/0000-0003-3149-5504)
- J. Scott Andrews (ORCID: https://orcid.org/0009-0001-5516-7719)
Institutions
- Children's Hospital of Philadelphia (US)
- Hospital Universitari i Politècnic La Fe (ES)
- Adelphi Group (United Kingdom) (GB)
- Takeda (United States) (US)
- AtlantiCare (US)
- ERN EpiCARE (FR)
- University of Pennsylvania (US)
Publication Details
- Journal
- Epilepsia Open
- Published
- 2025-09-22
- DOI
- https://doi.org/10.1002/epi4.70118
- Citations
- 3
- Primary Topic
- Epilepsy research and treatment
- Type
- article
- Field-Weighted Citation Impact
- 4.41