Clinician attitudes toward palliative care to enhance the quality of life for patients with sickle cell disease
Clinicians caring for patients with SCD recognize the potential benefits of PC, although they are unsure about patient responses to PC referrals. Collaborative care teams of SCD and PC specialists are rare. Educating clinicians and patients with SCD about PC is urgently needed to encourage greater collaboration among care teams, particularly in outpatient settings. Strengthened collaborations between SCD and PC specialists could enhance holistic support and quality of life for patients with SCD.
Authors
- Eberechi Nwogu-Onyemkpa (ORCID: https://orcid.org/0000-0002-5140-449X)
- Aanand Dinkar Naik (ORCID: https://orcid.org/0000-0001-6936-7984)
- Amber B. Amspoker (ORCID: https://orcid.org/0000-0003-3358-5976)
- Elizabeth Kvale (ORCID: https://orcid.org/0000-0002-4638-3831)
- Ify Osunkwo
- Nimrah Saleem (ORCID: https://orcid.org/0000-0002-3961-4945)
Institutions
- Michael E. DeBakey VA Medical Center (US)
- Baylor College of Medicine (US)
- Washington University in St. Louis (US)
- Novo Nordisk (Switzerland) (CH)
- The University of Texas Health Science Center (US)
- Wake Forest University (US)
- The University of Texas Health Science Center at Houston (US)
Publication Details
- Journal
- Journal of sickle cell disease.
- Published
- 2025-01-01
- DOI
- https://doi.org/10.1093/jscdis/yoaf030
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Institute of Clinical and Translational Sciences
- National Institutes of Health
- National Heart, Lung, and Blood Institute