“Oh my word, so overwhelmed”: Exploring the patient and family experience with diagnosis and treatment decision-making in pediatric CNS tumors

This study provides a nuanced understanding of pediatric CNS tumor care by centering patient and family experiences. Findings underscore the need for targeted interventions to improve access to innovative treatments, support informed decision-making, and enhance communication. Future research should incorporate quantitative methods to validate findings and develop scalable solutions that address structural and informational barriers, ultimately reducing disparities and improving family experiences in pediatric CNS tumor care.