‘I knew I had to drive my own bus’: perspectives of patients and healthcare professionals on improving information provision to rare cancer survivors
The findings suggest a need to improve how information is structured and delivered to rare cancer survivors to ensure their unique needs and questions are adequately addressed.
Authors
- Carlene J. Wilson (ORCID: https://orcid.org/0000-0002-1883-4690)
- Saskia F. A. Duijts (ORCID: https://orcid.org/0000-0001-6025-5361)
- Evelien Spelten (ORCID: https://orcid.org/0000-0003-1217-7316)
- Christine Cockburn
- Tamsin Farrugia (ORCID: https://orcid.org/0009-0007-2708-1188)
- Laura Hemming
Institutions
- The University of Melbourne (AU)
- Rare Cancers Australia (AU)
- Netherlands Comprehensive Cancer Organisation (NL)
- Bendigo Health (AU)
- Amsterdam University Medical Centers (NL)
- Cancer Center Amsterdam (NL)
- Vrije Universiteit Amsterdam (NL)
- Amsterdam UMC Location Vrije Universiteit Amsterdam (NL)
Publication Details
- Journal
- Journal of Cancer Survivorship
- Published
- 2025-09-19
- DOI
- https://doi.org/10.1007/s11764-025-01896-0
- Primary Topic
- Patient-Provider Communication in Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00