Hear My Voice! The Experience of Self-Advocacy Among Patients with Enterostomy: A Qualitative Study

<b>Objective:</b> This qualitative study aimed to understand the experience of self-advocacy among patients with enterostomy and to identify the behaviors, influencing factors, and benefits of self-advocacy. <b>Methods:</b> A descriptive phenomenological method was used, and the study was conducted from April to June 2024. A total of 17 patients with enterostomy were interviewed, and Colaizzi's seven-step method was used to analyze interview data. <b>Results:</b> Three themes and thirteen sub-themes were generated: behaviors of self-advocacy (information seeking, effective communication, support seeking, and decision making), influencing factors of self-advocacy (type of enterostomy, economic burden, caregiving burden, stigma, and social support), and benefits of self-advocacy (enhancing self-care skills, enhancing physiological-psychological-social adaptability, dietary habit modification, and peer support). <b>Conclusions:</b> Self-advocacy is a critical tool for overcoming challenges, meeting needs, and cultivating connected strength, and targeted interventions could be designed to improve the levels of self-advocacy and self-management.

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Publication Details

Journal
Nursing Reports
Published
2025-09-19
DOI
https://doi.org/10.3390/nursrep15090341
Primary Topic
Stoma care and complications
Type
article
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article

Hear My Voice! The Experience of Self-Advocacy Among Patients with Enterostomy: A Qualitative Study

Juan Du, Yashi Zou, Suephy C. Chen, Ye Shen et al.
Nursing Reports
Stoma care and complications
article

Hear My Voice! The Experience of Self-Advocacy Among Patients with Enterostomy: A Qualitative Study

Juan Du, Yashi Zou, Suephy C. Chen, Ye Shen, Jing Tan, Huijuan Ma
article en

Abstract

<b>Objective:</b> This qualitative study aimed to understand the experience of self-advocacy among patients with enterostomy and to identify the behaviors, influencing factors, and benefits of self-advocacy. <b>Methods:</b> A descriptive phenomenological method was used, and the study was conducted from April to June 2024. A total of 17 patients with enterostomy were interviewed, and Colaizzi's seven-step method was used to analyze interview data. <b>Results:</b> Three themes and thirteen sub-themes were generated: behaviors of self-advocacy (information seeking, effective communication, support seeking, and decision making), influencing factors of self-advocacy (type of enterostomy, economic burden, caregiving burden, stigma, and social support), and benefits of self-advocacy (enhancing self-care skills, enhancing physiological-psychological-social adaptability, dietary habit modification, and peer support). <b>Conclusions:</b> Self-advocacy is a critical tool for overcoming challenges, meeting needs, and cultivating connected strength, and targeted interventions could be designed to improve the levels of self-advocacy and self-management.

Nursing ReportsVol. 15(9)
Army Medical University (CN), Daping Hospital (CN), People's Liberation Army 401 Hospital (CN), Xinqiao Hospital (CN)
Openalex Percentile: Top 59%
Stoma care and complications
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