Hear My Voice! The Experience of Self-Advocacy Among Patients with Enterostomy: A Qualitative Study
<b>Objective:</b> This qualitative study aimed to understand the experience of self-advocacy among patients with enterostomy and to identify the behaviors, influencing factors, and benefits of self-advocacy. <b>Methods:</b> A descriptive phenomenological method was used, and the study was conducted from April to June 2024. A total of 17 patients with enterostomy were interviewed, and Colaizzi's seven-step method was used to analyze interview data. <b>Results:</b> Three themes and thirteen sub-themes were generated: behaviors of self-advocacy (information seeking, effective communication, support seeking, and decision making), influencing factors of self-advocacy (type of enterostomy, economic burden, caregiving burden, stigma, and social support), and benefits of self-advocacy (enhancing self-care skills, enhancing physiological-psychological-social adaptability, dietary habit modification, and peer support). <b>Conclusions:</b> Self-advocacy is a critical tool for overcoming challenges, meeting needs, and cultivating connected strength, and targeted interventions could be designed to improve the levels of self-advocacy and self-management.
Authors
- Juan Du (ORCID: https://orcid.org/0000-0002-1850-3613)
- Yashi Zou
- Suephy C. Chen (ORCID: https://orcid.org/0000-0002-0678-7380)
- Ye Shen (ORCID: https://orcid.org/0000-0002-4891-8801)
- Jing Tan (ORCID: https://orcid.org/0009-0005-4863-7611)
- Huijuan Ma (ORCID: https://orcid.org/0000-0002-5720-312X)
Institutions
- Army Medical University (CN)
- Daping Hospital (CN)
- People's Liberation Army 401 Hospital (CN)
- Xinqiao Hospital (CN)
Publication Details
- Journal
- Nursing Reports
- Published
- 2025-09-19
- DOI
- https://doi.org/10.3390/nursrep15090341
- Primary Topic
- Stoma care and complications
- Type
- article
- Field-Weighted Citation Impact
- 0.00