Nordisk samarbejde om oral helse ved sjældne syndromer

Nordic collaboration on oral health in rare diseases Nor Tannlegeforen Tid. 2025; 135: Complex inherited rare diseases that manifest in the oral cavity often require diagnosis, counselling, and potentially highly specialized treatment. In the Nordic countries, competence centres have existed for several decades, providing diagnostic services, counselling, and highly specialized dental treatment for patients with inherited rare diseases. This article takes the reader through a description of the important collaboration that, since the establishment of the centers, has formed the foundation for meeting the specific needs of this patient group. Internally, we refer to ourselves as the "rare family". The historical perspective is exactly the foundation for future visions of dental perspectives in rare diseases.