Validating the standardised outcomes in nephrology-life participation (SONG-LP) measure in people receiving peritoneal dialysis: Rationale and process
Life participation has been identified as a critically important core outcome to be reported in all trials in people receiving peritoneal dialysis (PD). Life participation is defined as the ability to participate in meaningful activities such as work (e.g. employment, housework, study), family, social (e.g. time with friends) and leisure (travel, hobbies, exercise) activities. However, life participation is rarely and inconsistently reported in trials in PD. The standardised outcomes in nephrology-life participation (SONG-LP) instrument was validated in adult kidney transplant recipients and demonstrated internal consistency and test-retest reliability. In this article, we outline the rationale and process for validating the SONG-LP instrument in people receiving PD.
Authors
- Karine Manera (ORCID: https://orcid.org/0000-0002-0552-6074)
- Cameron Thomas Burnett (ORCID: https://orcid.org/0000-0002-2799-4397)
- Janine Farragher (ORCID: https://orcid.org/0000-0002-3930-2191)
- Rajnish Mehrotra (ORCID: https://orcid.org/0000-0003-2833-067X)
- Rachael L. Morton (ORCID: https://orcid.org/0000-0001-7834-0572)
- Ana Elizabeth Figueiredo (ORCID: https://orcid.org/0000-0002-8555-8649)
- Allison Tong (ORCID: https://orcid.org/0000-0001-8973-9538)
- Yeoungjee Cho (ORCID: https://orcid.org/0000-0002-3502-9837)
- David Wayne Johnson (ORCID: https://orcid.org/0000-0001-5491-3460)
- Melissa S Cheetham (ORCID: https://orcid.org/0000-0001-5776-6160)
- Rachael Walker (ORCID: https://orcid.org/0000-0001-5163-4351)
- Catherine Cheung (ORCID: https://orcid.org/0000-0001-7729-3073)
- Sarbjit V. Jassal (ORCID: https://orcid.org/0000-0002-6780-1123)
- Jenny I. Shen (ORCID: https://orcid.org/0000-0002-2993-403X)
- Daniel Schwartz
- Fiona Loud (ORCID: https://orcid.org/0000-0001-7706-5396)
- Martin Wilkie (ORCID: https://orcid.org/0000-0003-1059-6453)
- Anastasia M. Hughes (ORCID: https://orcid.org/0009-0003-5512-0333)
- Martin Howell (ORCID: https://orcid.org/0000-0001-9740-712X)
- Thyago Proença de Moraes (ORCID: https://orcid.org/0000-0002-2983-3968)
- Helen Hurst (ORCID: https://orcid.org/0000-0002-7268-171X)
- Angela Ju
Institutions
- The University of Sydney (AU)
- Translational Research Institute (AU)
- University Health Network (CA)
- University of British Columbia (CA)
- University of Auckland (NZ)
- The University of Queensland (AU)
- Pontifícia Universidade Católica do Paraná (BR)
- Fraser Health (CA)
- University of Toronto (CA)
- University of Washington (US)
- UCLA Medical Center (US)
- Princess Alexandra Hospital (AU)
- Children's Hospital at Westmead (AU)
- Kidney Care UK (GB)
- Sunshine Coast University Hospital (AU)
- Sheffield Teaching Hospitals NHS Foundation Trust (GB)
- Kidney Health Australia (AU)
- Harbor–UCLA Medical Center (US)
- National Health and Medical Research Council (AU)
- Pontifícia Universidade Católica do Rio Grande do Sul (BR)
- University of Salford (GB)
Publication Details
- Journal
- Peritoneal Dialysis International
- Published
- 2025-09-18
- DOI
- https://doi.org/10.1177/08968608251376478
- Primary Topic
- Dialysis and Renal Disease Management
- Type
- article
- Field-Weighted Citation Impact
- 0.00