From shame to advocacy: a late-diagnosed autistic woman’s journey through self-discovery and systemic barriers

Purpose This paper aims to explore the lived experience of a late-diagnosed autistic woman, traversing the journey from self-blame to self-acceptance and advocacy. It expounds upon the impact of when invisible disabilities interact with rigid systems, and seeks to bridge the gap between personal experience and professional knowledge, calling for systemic changes that support neurodiversity. Design/methodology/approach Using an autoethnographic exploration, this paper draws on diary entries, professional experiences as a therapist, educator and advocate, and self-reflections during and after the diagnostic process. It contextualizes first-person accounts with relevant literature to throw further light on themes such as masking, stigma, environmental sensitivities, safety challenges and the complex relationship between self-awareness and societal barriers. Findings The narrative shows that while late diagnosis can bring relief and clarity, it also exposes systemic inadequacies. Routine activities such as bureaucratic paperwork, seeking safety or engaging in public spaces become overwhelming due to noninclusive processes and highly stimulating environments. Despite professional knowledge, internalized stereotypes delayed recognition. This paper highlights practical changes – quiet hours, multiple communication modes, sensory-friendly spaces – that benefit autistic individuals and others. Practical implications This paper argues that neurodiversity-affirming systems are essential, not optional, and that changes made for autistic individuals improve environments for everyone. Originality/value Women diagnosed later in life remain underrepresented in autism research, particularly those in helping professions. This paper adds a rare insider perspective, showing how lived experience can inform practice, policy and inclusive design.