Current practices and trends in surgical decision‐making for children with Lennox–Gastaut syndrome: A cross‐sectional survey by the Pediatric Epilepsy Research Consortium
Lennox-Gastaut Syndrome (LGS) is a severe form of epilepsy that may require surgery when medications are not effective. This study found that surgical care for LGS varies widely across pediatric epilepsy centers in the United States, including when surgery is recommended, how patients are evaluated, and which procedures are available. Newer approaches such as brain stimulation are being used more often, although access remains inconsistent. These findings highlight the need for clearer treatment pathways to ensure that children with LGS have equitable access to the best possible care.
Authors
- Sonam Bhalla (ORCID: https://orcid.org/0000-0003-3544-9900)
- Aaron E. L. Warren (ORCID: https://orcid.org/0000-0001-6534-2800)
- Renée A. Shellhaas (ORCID: https://orcid.org/0000-0002-3175-3908)
- Gozde Erdemir (ORCID: https://orcid.org/0000-0002-8952-3005)
- Tracy Dixon‐Salazar (ORCID: https://orcid.org/0000-0002-7801-1741)
- Cemal Karakas (ORCID: https://orcid.org/0000-0002-9516-2285)
- Syndi Seinfeld
- Juliann Paolicchi
- Jorge Vidaurre (ORCID: https://orcid.org/0000-0003-3495-3312)
- Hyunyong Koh (ORCID: https://orcid.org/0000-0002-3995-4341)
- Babitha Haridas
- Tobias Loddenkemper (ORCID: https://orcid.org/0000-0003-2074-0674)
- Cynthia Keator
- Anup D. Patel
- Dave Clarke (ORCID: https://orcid.org/0000-0002-9032-1291)
- Michelle Chiu (ORCID: https://orcid.org/0009-0008-6282-5872)
- Debopam Samanta (ORCID: https://orcid.org/0000-0002-5154-8717)
- Juliet K. Knowles (ORCID: https://orcid.org/0000-0002-9214-2991)
- Dewi Depositario‐Cabacar
- Anthony L. Fine (ORCID: https://orcid.org/0000-0001-5256-8368)
- Carl E. Stafstrom (ORCID: https://orcid.org/0000-0002-4432-2453)
Institutions
- Boston Children's Hospital (US)
- Northwell Health (US)
- Nationwide Children's Hospital (US)
- Children's National (US)
- Harvard University (US)
- Johns Hopkins University (US)
- Baylor College of Medicine (US)
- Washington University in St. Louis (US)
- Johns Hopkins Medicine (US)
- Massachusetts General Hospital (US)
- Cook Children's Medical Center (US)
- Dell Children's Medical Center of Central Texas (US)
- Lennox-Gastaut Syndrome Foundation (US)
- Kosair Children's Hospital (US)
- Mayo Clinic in Florida (US)
- Children's Healthcare of Atlanta (US)
- Joe DiMaggio Children's Hospital (US)
- Mass General Brigham (US)
- University of Arkansas for Medical Sciences (US)
- Penn State Milton S. Hershey Medical Center (US)
- Stanford University (US)
Publication Details
- Journal
- Epilepsia Open
- Published
- 2025-09-18
- DOI
- https://doi.org/10.1002/epi4.70144
- Citations
- 4
- Primary Topic
- Epilepsy research and treatment
- Type
- article
- Field-Weighted Citation Impact
- 5.88