Abstract B100: Designing a qualitative study on survivorship care experiences among Black women breast cancer survivors in Maryland

Abstract Purpose: Survivorship care plans (SCPs) support the transition from oncology to follow-up care, yet limited research exists on SCP use among Black breast cancer (BC) survivors. To address this gap, we are recruiting Maryland-based BC survivors to study SCP use, care experiences, and associations with social determinants of health (SDOH). Our qualitative aim will assess SCP knowledge and primary care needs among 30 Black BC survivors via in-depth interviews. This preliminary analysis compares SDOH factors between those who declined and agreed to be contacted to participate in the qualitative study. Methods: Black women BC survivors who consented to be recontacted for a Zoom interview during our baseline online research survey will be recruited. Eligible participants for the online survey and interview are adult Black women in Maryland, diagnosed with stage I–III primary BC, and who have completed BC treatments. Qualitative interviews will be conducted with up to 30 participants, ensuring diversity by age, time since diagnosis, and county. For this preliminary analysis, descriptive statistics were used to compare demographics and SDOH of those who declined and agreed to being contacted for interview participation. Results: As of June 2025, 95 participants completed the baseline survey, 62 (65.2%) agreed to be recontacted for an interview, while 33 (34.7%) declined. Among decliners, the mean ages at time of the survey and at diagnosis were 58 years (standard deviation [SD] = 10) and 47 years (SD = 12.9), respectively. Among those who agreed, the mean ages at survey and diagnosis were 59 (SD = 12.2) and 50 years (SD = 12), respectively. In relation to income, 17.8% of decliners and 25.4% of those who agreed reported annual household incomes <$40,000. Decliners were more likely to have private insurance compared to those who agreed (56.3% vs. 49.2%) and higher rates of being high school graduates (15.6% vs. 4.8%), but lower rates of completing college (28.1% vs. 38.7%). Perceptions of neighborhood safety also differed with fewer decliners reporting feeling extremely safe (12.5% vs. 22.6%). There were no differences in transportation access, with most participants in both groups reporting driving themselves to medical appointments (81.3% vs. 82.3%). Reports on job discrimination were more common among decliners (62% vs. 54.8%), as were challenges affording balanced meals (15.6% vs. 13.1%). A greater proportion of decliners received most of their care from a primary care provider (87.5% vs. 75.8%) and received an SCP (100% vs. 93%). Conclusion: While developing our qualitative study, we found that women who declined to be recontacted for participation faced some adverse SDOH, including lower education, neighborhood safety, job discrimination, and difficulty affording balanced meals. Our future studies will evaluate more targeted strategies to include the voices of women impacted by social disadvantage and structural barriers. Citation Format: Lensa S. Keno, Kate E. Dibble, Katherine Clegg-Smith, Kala Visvanathan, Avonne E. Connor. Designing a qualitative study on survivorship care experiences among Black women breast cancer survivors in Maryland [abstract]. In: Proceedings of the 18th AACR Conference on the Science of Cancer Health Disparities; 2025 Sep 18-21; Baltimore, MD. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2025;34(9 Suppl):Abstract nr B100.

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Cancer Epidemiology Biomarkers & Prevention
Published
2025-09-18
DOI
https://doi.org/10.1158/1538-7755.disp25-b100
Primary Topic
Cardiovascular Health and Risk Factors
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article
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article

Abstract B100: Designing a qualitative study on survivorship care experiences among Black women breast cancer survivors in Maryland

Clegg-Smith Katherine, Kate E. Dibble, Avonne E. Connor, Kala Visvanathan et al.
Cancer Epidemiology Biomarkers & Prevention
Cardiovascular Health and Risk Factors
article

Abstract B100: Designing a qualitative study on survivorship care experiences among Black women breast cancer survivors in Maryland

Clegg-Smith Katherine, Kate E. Dibble, Avonne E. Connor, Kala Visvanathan, Lensa S. Keno
article en

Abstract

Abstract Purpose: Survivorship care plans (SCPs) support the transition from oncology to follow-up care, yet limited research exists on SCP use among Black breast cancer (BC) survivors. To address this gap, we are recruiting Maryland-based BC survivors to study SCP use, care experiences, and associations with social determinants of health (SDOH). Our qualitative aim will assess SCP knowledge and primary care needs among 30 Black BC survivors via in-depth interviews. This preliminary analysis compares SDOH factors between those who declined and agreed to be contacted to participate in the qualitative study. Methods: Black women BC survivors who consented to be recontacted for a Zoom interview during our baseline online research survey will be recruited. Eligible participants for the online survey and interview are adult Black women in Maryland, diagnosed with stage I–III primary BC, and who have completed BC treatments. Qualitative interviews will be conducted with up to 30 participants, ensuring diversity by age, time since diagnosis, and county. For this preliminary analysis, descriptive statistics were used to compare demographics and SDOH of those who declined and agreed to being contacted for interview participation. Results: As of June 2025, 95 participants completed the baseline survey, 62 (65.2%) agreed to be recontacted for an interview, while 33 (34.7%) declined. Among decliners, the mean ages at time of the survey and at diagnosis were 58 years (standard deviation [SD] = 10) and 47 years (SD = 12.9), respectively. Among those who agreed, the mean ages at survey and diagnosis were 59 (SD = 12.2) and 50 years (SD = 12), respectively. In relation to income, 17.8% of decliners and 25.4% of those who agreed reported annual household incomes <$40,000. Decliners were more likely to have private insurance compared to those who agreed (56.3% vs. 49.2%) and higher rates of being high school graduates (15.6% vs. 4.8%), but lower rates of completing college (28.1% vs. 38.7%). Perceptions of neighborhood safety also differed with fewer decliners reporting feeling extremely safe (12.5% vs. 22.6%). There were no differences in transportation access, with most participants in both groups reporting driving themselves to medical appointments (81.3% vs. 82.3%). Reports on job discrimination were more common among decliners (62% vs. 54.8%), as were challenges affording balanced meals (15.6% vs. 13.1%). A greater proportion of decliners received most of their care from a primary care provider (87.5% vs. 75.8%) and received an SCP (100% vs. 93%). Conclusion: While developing our qualitative study, we found that women who declined to be recontacted for participation faced some adverse SDOH, including lower education, neighborhood safety, job discrimination, and difficulty affording balanced meals. Our future studies will evaluate more targeted strategies to include the voices of women impacted by social disadvantage and structural barriers. Citation Format: Lensa S. Keno, Kate E. Dibble, Katherine Clegg-Smith, Kala Visvanathan, Avonne E. Connor. Designing a qualitative study on survivorship care experiences among Black women breast cancer survivors in Maryland [abstract]. In: Proceedings of the 18th AACR Conference on the Science of Cancer Health Disparities; 2025 Sep 18-21; Baltimore, MD. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2025;34(9 Suppl):Abstract nr B100.

Cancer Epidemiology Biomarkers & PreventionVol. 34(9_Supplement)
Harvard University (US), Johns Hopkins University (US), Dana-Farber Cancer Institute (US), Sidney Kimmel Comprehensive Cancer Center (US)
Openalex Percentile: Top 61%
Cardiovascular Health and Risk Factors
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