What have we learned about systemic sclerosis from the EUSTAR database?
EUSTAR has become a reference model for collaborative research in rare diseases. Its findings have directly informed guidelines and routine management of SSc. Future directions include integrating digital tools, artificial intelligence, and expanding the registry's role in clinical trial design and personalized medicine.
Authors
- Michael Hughes (ORCID: https://orcid.org/0000-0003-3361-4909)
- Thomas F. Osborne (ORCID: https://orcid.org/0000-0002-8896-2487)
- Marie‐Elise Truchetet (ORCID: https://orcid.org/0000-0001-8045-0180)
- Madelon C Vonk (ORCID: https://orcid.org/0000-0002-2266-9907)
- Francesco Del Galdo (ORCID: https://orcid.org/0000-0002-8528-2283)
- Tânia Santiago (ORCID: https://orcid.org/0000-0002-1562-4022)
- Maria Grazia Lazzaroni (ORCID: https://orcid.org/0000-0002-1860-6866)
- Corrado Campochiaro
Institutions
- Radboud University Nijmegen (NL)
- Vita-Salute San Raffaele University (IT)
- Manchester Academic Health Science Centre (GB)
- Radboud University Medical Center (NL)
- University of Manchester (GB)
- Centre Hospitalier Universitaire de Bordeaux (FR)
- Azienda Socio Sanitaria Territoriale degli Spedali Civili di Brescia (IT)
- NIHR Leeds Musculoskeletal Biomedical Research Unit (GB)
- University of Brescia (IT)
Publication Details
- Journal
- Current Opinion in Rheumatology
- Published
- 2025-09-18
- DOI
- https://doi.org/10.1097/bor.0000000000001128
- Citations
- 1
- Primary Topic
- Systemic Sclerosis and Related Diseases
- Type
- article
- Field-Weighted Citation Impact
- 1.47