Agency in action: Engaging patient participation in research
Programs like the Masterclass can activate and strengthen patient agency, enabling individuals with lived experience to shape research in ways that are personally meaningful and scientifically impactful. By investing in patient capacity and fostering equitable research environments, institutions can move engagement beyond tokenism and toward partnerships that reshape the purpose-and the practice-of health research.
Authors
- Jillianne Code (ORCID: https://orcid.org/0000-0002-3096-1289)
- Heather Lannon
- Aimee Lutrin
Institutions
- University of British Columbia (CA)
Publication Details
- Journal
- Patient Education and Counseling
- Published
- 2025-09-16
- DOI
- https://doi.org/10.1016/j.pec.2025.109353
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00