Children’s experiences of a support program during their first year with juvenile idiopathic arthritis
The results showed that JASP-1 successfully integrated contact through phone calls, visits, and medical and psychosocial support in a satisfactory and accessible way for children recently diagnosed with JIA. This provided them with a comprehensive sense of security. Our findings indicate that patient- and family-centered programs like JASP-1 not only have the potential to enhance and standardize care for children newly diagnosed with JIA but also to contribute to improved and equitable healthcare outcomes in the future.
Authors
- Karina Mördrup (ORCID: https://orcid.org/0009-0000-4652-9688)
- Cecilia Bartholdson (ORCID: https://orcid.org/0000-0001-5807-3438)
- Eva Broström (ORCID: https://orcid.org/0000-0002-2967-8080)
- Johanna Granhagen Jungner (ORCID: https://orcid.org/0000-0003-4103-6539)
Institutions
- Karolinska University Hospital (SE)
- Karolinska Institutet (SE)
Publication Details
- Journal
- Pediatric Rheumatology
- Published
- 2025-09-16
- DOI
- https://doi.org/10.1186/s12969-025-01142-y
- Primary Topic
- Adolescent and Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 0.00