“A Double-Edged Sword”: Influence of the 21st Century Cures Act on the Childhood, Adolescent, and Young Adult Cancer Care Experience
Although key informants recognize that EHR portal access offers important benefits in CAYA cancer care, participants also identified ways in which it can impede on patient, family, and health care team collaboration and well-being. In this new era of information sharing, further reforms are needed to improve health information delivery and the cancer care experience.
Authors
- Erica C. Kaye (ORCID: https://orcid.org/0000-0002-6522-3876)
- Nidhi Mali (ORCID: https://orcid.org/0000-0001-5280-9993)
- Jennifer M. Snaman (ORCID: https://orcid.org/0000-0002-2306-8994)
- Meghan Lindsay (ORCID: https://orcid.org/0009-0003-7004-5175)
- Shannon M. Dean
- Valerie McLaughlin Crabtree (ORCID: https://orcid.org/0000-0001-8268-5418)
- David Gleeson
- Sophia de Oliveira
- Patrick Campbell (ORCID: https://orcid.org/0000-0002-2198-5991)
- Mona Clappier (ORCID: https://orcid.org/0000-0003-4807-8109)
- Deborah Feifer (ORCID: https://orcid.org/0000-0001-7665-7410)
- Prasanna Ananth (ORCID: https://orcid.org/0000-0002-5614-7445)
- Sarra Kchouk O’Bryan
- Amber Kessler
Institutions
- Boston Children's Hospital (US)
- St. Jude Children's Research Hospital (US)
- Yale Cancer Center (US)
- Yale University (US)
- Dana-Farber Cancer Institute (US)
Publication Details
- Journal
- Journal of the National Comprehensive Cancer Network
- Published
- 2025-09-15
- DOI
- https://doi.org/10.6004/jnccn.2025.7053
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00