Quality of Life in Adult Individuals Living With or at Risk of a Hereditary Cancer Predisposition Syndrome: A Scoping Review of the Qualitative Literature
Results contribute to insight on how individuals at risk cope with genetic testing and will inform the development of a PROM on their HRQOL that will be applicable for individualised patient management and service evaluation.
Authors
- Monika Sztankay (ORCID: https://orcid.org/0000-0002-7938-1250)
- Sally Wheelwright (ORCID: https://orcid.org/0000-0003-0657-2483)
- Anne Oberguggenberger (ORCID: https://orcid.org/0000-0002-9377-4771)
- Vasos Vassiliou (ORCID: https://orcid.org/0000-0001-8647-0860)
- Aylin Yener (ORCID: https://orcid.org/0000-0003-0820-3390)
- Belinda Rahman (ORCID: https://orcid.org/0000-0002-6674-7081)
- Eveline M. A. Bleiker (ORCID: https://orcid.org/0000-0003-4357-949X)
- Bernhard Holzner (ORCID: https://orcid.org/0000-0002-3389-3621)
- Veronika I Engele
Institutions
- Brighton and Sussex Medical School (GB)
- Institute for Women's Policy Research (US)
- Innsbruck Medical University (AT)
- Universität Innsbruck (AT)
- Leiden University Medical Center (NL)
- Portsmouth Hospitals NHS Trust (GB)
- Bank of Cyprus Oncology Center (CY)
- University Hospital Innsbruck (AT)
- University College London (GB)
Publication Details
- Journal
- Cancer Medicine
- Published
- 2025-09-01
- DOI
- https://doi.org/10.1002/cam4.71069
- Citations
- 1
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 3.49
Funders
- European Organisation for Research and Treatment of Cancer