Nurses at the helm of transforming lives in the shadows of Hemophilia

The multifaceted challenges faced by hemophilia survivors, focusing on psychological distress, social isolation and quality of life (QoL). The intervention, a nurse-led program, significantly improved QoL by addressing emergency management, physical activity and dietary guidance. The quantitative results showed a notable reduction in QoL scores for the intervention group. Sociodemographic factors like age, disease severity and place of residence influenced outcomes. Thus, we show the importance of comprehensive, patient-centered care to improve both clinical and psychosocial outcomes for hemophilia survivors.