Parental Use of Social Media and the Internet in the Context of Their Child’s Genetic Neurodevelopmental Disorder: Mixed Methods Study Nested in the GenROC Cohort Study
This mixed methods study shows the evolving landscape of SMG use in neurodevelopmental disorders, highlights its benefits and downsides, and is widely applicable to all parent SMGs for specific niche medical conditions. Using the strength of these groups in a more collaborative approach in the future could prove useful to clinicians, families, and researchers alike.
Authors
- Jenny C Ingram (ORCID: https://orcid.org/0000-0003-2366-008X)
- John Powell (ORCID: https://orcid.org/0000-0002-1456-4857)
- Sarah L. Wynn (ORCID: https://orcid.org/0000-0001-6531-8181)
- Karen Low (ORCID: https://orcid.org/0000-0002-4975-9363)
- Georgia Treneman‐Evans (ORCID: https://orcid.org/0000-0003-0707-6078)
Institutions
- University Hospitals Bristol NHS Foundation Trust (GB)
- University of Bristol (GB)
- University of Oxford (GB)
- Foetal Alcohol Spectrum Disorders Clinic (GB)
Publication Details
- Journal
- JMIR Pediatrics and Parenting
- Published
- 2025-09-10
- DOI
- https://doi.org/10.2196/76526
- Citations
- 1
- Primary Topic
- Child Development and Digital Technology
- Type
- article
- Field-Weighted Citation Impact
- 8.93