1235 Post-death reflections of bereaved family members on quality of end-of-life care in residential aged care

<h3>Aim</h3> To explore bereaved family members’ experiences of the end-of-life care received by their family member living in residential aged care. <h3>Background</h3> The provision of high-quality palliative and end-of-life care is crucial for residents of aged care facilities. Family member perspectives provide rich insights about end-of-life care provision. IMPART is an NHMRC-funded, cluster randomised trial designed to evaluate the effectiveness of an education and specialist telehealth support intervention for RACF staff on enabling preference-based care, reducing unplanned hospitalisation and improving end-of-life care quality. The trial commenced in 2023 with 10 Melbourne-based RACFs. <h3>Methods</h3> Family members of residents who died at participating facilities participated in a telephone survey about their relative’s end-of-life care, including satisfaction with care at the end of life (Satisfaction with Care at End of Life), comfort at end-of-life and end-of-life symptoms (Comfort Assessment in Dying), and perceived quality of death and impact of end-of-life care on families (ICECAP – Close Person Measure), with the option to provide open-ended responses for each care quality domain. Data were analysed using descriptive statistics and thematic analysis. <h3>Results</h3> Twenty-eight people completed the survey. Most respondents agreed that their family member received all necessary nursing assistance (93%), felt involved in decision-making (93%) and felt supported during their relative’s end-of-life period (96%). Qualitative analysis indicated perceived satisfaction with the compassionate care provided by RACF staff, and the proactive care and support from hospital in-reach teams. Less satisfaction was reported for end-of-life communication, continuity of care and RACF staff knowledge and training about specific end-of-life interventions and treatments. <h3>Discussion</h3> The research explores the authentic perspectives of bereaved family members’ lived experience of involvement in end-of-life care received by their family member living in residential aged care. <h3>Unique Contribution</h3> Family members are key sources of information on end-of-life care quality, contributing important data for evaluating the IMPART trial. <h3>Implications</h3> Family members provide valuable insights highlighting areas of quality care, as well as identifying gaps in practice, including optimising bidirectional communication. These findings can inform advance care planning and consent education and training. Families can provide feedback on the accessibility and effectiveness of end-of-life discussions to refine how care preferences are communicated and documented. This ensures providers can better address the needs of future families, making the end-of-life journey more person-centred, compassionate and supportive.

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Journal
Poster
Published
2025-09-01
DOI
https://doi.org/10.1136/spcare-2025-acp.92
Primary Topic
Grief, Bereavement, and Mental Health
Type
article
Field-Weighted Citation Impact
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article

1235 Post-death reflections of bereaved family members on quality of end-of-life care in residential aged care

Ross Bicknell, Wen Kwang Lim, Paul A Yates, Mark Tacey et al.
Poster
Grief, Bereavement, and Mental Health
article

1235 Post-death reflections of bereaved family members on quality of end-of-life care in residential aged care

Ross Bicknell, Wen Kwang Lim, Paul A Yates, Mark Tacey, Barbara Hayes, Debra Nestel, Andrew H.H Wong, Len Gray, Danny Hills, Lidia Engel, Penny Harvey, Katrin Gerber, Brian Le, Christina Johnson, Dimity Pond, Frances Batchelor, Melissa J. Bloomer, Anita Goh, Kai H. Lim, Steven M. Savvas, Kayla Lock, Ellen Gaffy, Kerry Hwang, Kirsten Moore, Karen Bodna, B Lui, Anna Lane
article en

Abstract

<h3>Aim</h3> To explore bereaved family members’ experiences of the end-of-life care received by their family member living in residential aged care. <h3>Background</h3> The provision of high-quality palliative and end-of-life care is crucial for residents of aged care facilities. Family member perspectives provide rich insights about end-of-life care provision. IMPART is an NHMRC-funded, cluster randomised trial designed to evaluate the effectiveness of an education and specialist telehealth support intervention for RACF staff on enabling preference-based care, reducing unplanned hospitalisation and improving end-of-life care quality. The trial commenced in 2023 with 10 Melbourne-based RACFs. <h3>Methods</h3> Family members of residents who died at participating facilities participated in a telephone survey about their relative’s end-of-life care, including satisfaction with care at the end of life (Satisfaction with Care at End of Life), comfort at end-of-life and end-of-life symptoms (Comfort Assessment in Dying), and perceived quality of death and impact of end-of-life care on families (ICECAP – Close Person Measure), with the option to provide open-ended responses for each care quality domain. Data were analysed using descriptive statistics and thematic analysis. <h3>Results</h3> Twenty-eight people completed the survey. Most respondents agreed that their family member received all necessary nursing assistance (93%), felt involved in decision-making (93%) and felt supported during their relative’s end-of-life period (96%). Qualitative analysis indicated perceived satisfaction with the compassionate care provided by RACF staff, and the proactive care and support from hospital in-reach teams. Less satisfaction was reported for end-of-life communication, continuity of care and RACF staff knowledge and training about specific end-of-life interventions and treatments. <h3>Discussion</h3> The research explores the authentic perspectives of bereaved family members’ lived experience of involvement in end-of-life care received by their family member living in residential aged care. <h3>Unique Contribution</h3> Family members are key sources of information on end-of-life care quality, contributing important data for evaluating the IMPART trial. <h3>Implications</h3> Family members provide valuable insights highlighting areas of quality care, as well as identifying gaps in practice, including optimising bidirectional communication. These findings can inform advance care planning and consent education and training. Families can provide feedback on the accessibility and effectiveness of end-of-life discussions to refine how care preferences are communicated and documented. This ensures providers can better address the needs of future families, making the end-of-life journey more person-centred, compassionate and supportive.

Poster
Griffith University (AU), University of Tasmania (AU), The Royal Melbourne Hospital (AU), Federation University (AU), The University of Queensland (AU), The University of Melbourne (AU), Northern Health (AU), National Ageing Research Institute (AU), Eastern Health (AU), Australian Publishers Association (AU), Austin Health (AU), Monash University (AU), RMIT University (AU)
Openalex Percentile: Top 45%
Grief, Bereavement, and Mental Health
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