18 Creating a CPR patient information leaflet without mentioning CPR

<h3>Aim</h3> To develop consumer information and empowerment tool about Cardiopulmonary Resuscitation (CPR) <h3>Background</h3> Conversations between patients and clinicians about CPR can be emotive and complex, especially when CPR is not clinically indicated. A project led by the New Zealand national ACP programme and driven by a Better CPR Conversations Strategy Group aimed to develop resources to support CPR conversations and shared goals of care discussions nationwide. Scoping hui (gatherings) with communities identified the need for a patient tool that better prepared patients and whānau for a conversation about their treatment and care options should they deteriorate. The focus of the tool was to be empowerment – minimising current power imbalances by promoting two-way dialogue between patients, their whānau (extended family), and clinicians when making decisions about goals of care and CPR status. The plan was to develop a patient leaflet, for hospital inpatients identified as being at risk for deterioration during their current admission, that supports conversations through consumer-led questions. <h3>Methods</h3> Four co-design workshops with community were held across the country with predominantly Māori participants. Each incorporated Māori tikanga protocols and whakawhānaungātanga (relationships and engagement) to inform the development of the core elements of the leaflet and specific questions that consumers could ask clinicians so they could make informed decisions about CPR. <h3>Outcomes</h3> The leaflet was developed in te reo Māori and English with sections covering preparation and context for the conversation, consumer rights, preparatory thinking prompts and where to get support. The consumer-led questions developed include: What’s happening to me? What’s likely to happen to me next? If things don’t go well, what are my options? What will this mean for me now and in the future Consumers emphasised that the leaflet should not include details about EOL or CPR, instead this sensitive information should be discussed in-person by the clinical team. <h3>Unique Contribution</h3> We present a co-designed consumer leaflet about resuscitation that empowers consumers to drive the questions and encourages clinical teams to provide personalised information about what may lie ahead. <h3>Implications for Practice</h3> Consumers do not want to have generic or graphical written information about CPR or EOL delivered in a leaflet. Instead, they wish to have realistic, understandable, personally contextualised information about their resuscitation options presented by the clinical team.