1258 Developing a global and comprehensive definition for advance care planning
<h3>Background</h3> The ACP-international society is in the process of conducting a global ACP consensus driven definition and the structural elements necessary for advance care planning through a Delphi process. Prior to this, two international ACP definitions were published for adults (2017), one for persons with dementia (2023) and one for Asia societies (2024). Those contributed significantly to our understanding of ACP however lacked global inclusion, various population group (e.g. minors) and required structural elements for ACP programs. <h3>Aim/Purpose</h3> Building upon the global Delphi process results, this focus group workshop will further contribute to the global understanding of an ACP and required design elements. <h3>Objectives</h3> Participants will be asked to identify, articulate and discuss what regional specifics, population groups and structural elements are not included in the current ACP definitions. Participants will contribute to a global, inclusive and comprehensive ACP definition and required structural elements. <h3>Audience</h3> This workshop is intended for consumers and ACP experts (practitioners, research and science, policy making) with heterogeneous professional, local and cultural backgrounds. There should be a willingness for the discussions to be audio-recorded and transcribed. Consent will be asked for in the workshop. No min./max. number of attendees. <h3>Structure/Format</h3> Through storytelling and case studies, participants will be provided the opportunity to learn about unintended excluded populations and overlooked structural elements of current ACP. Participants will actively collaborate in small group discussions with an aim to include diversity, culture and inclusion throughout ACP definitions and structural elements. Standardize questions will be posed, followed by facilitated discussion with a goal to be curious and learn from the diversity of participants lived experiences and expertise. <h3>Uniqueness</h3> Participants in this workshop will have a unique opportunity to contribute to a global consensus driven definition of ACP and required design elements through in-person dialogue. Following the evaluation of the on-line Dephi process, this qualitative focus group method provides further exploration into how ACP has expanded and evolved at a micro, meso and macro levels. <h3>Implications</h3> The previous ACP Delphi studies provided us a step towards unifying select countries consensus definition and practice recommendations. A globally shared consensus-based definition will support consistent application within multidisciplinary clinical practice, organizational policies, research, and the law. This work will significantly impact how ACP is understood, practiced and conveyed to persons and those important to them as they go through their health journey within the broader health systems.
Authors
- Kornelia Götze (ORCID: https://orcid.org/0000-0001-8134-7521)
- Craig Sinclair (ORCID: https://orcid.org/0000-0003-2734-2951)
- Tanja Krones (ORCID: https://orcid.org/0000-0001-9880-0564)
- Cristina Lasmarías (ORCID: https://orcid.org/0000-0002-5679-2962)
- Erik K. Fromme (ORCID: https://orcid.org/0000-0002-6731-2338)
- Cheng‐Pei Lin (ORCID: https://orcid.org/0000-0001-5810-8776)
- Cari Borenko (ORCID: https://orcid.org/0009-0002-4030-7392)
- Laura Kim Sieber
Institutions
- National Yang Ming Chiao Tung University (TW)
- Fraser Health (CA)
- University of Zurich (CH)
- UNSW Sydney (AU)
- Ministry of Health (ES)
- University Hospital of Zurich (CH)
- Ariadne Diagnostics (United States) (US)
- Heinrich Heine University Düsseldorf (DE)
Publication Details
- Published
- 2025-09-01
- DOI
- https://doi.org/10.1136/spcare-2025-acp.56
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00