1256 A global and comprehensive definition of advance care planning: results of an international Delphi-process

<h3>Background</h3> Advance care planning (ACP) has been firstly mentioned in 1993 and used increasingly since 2010 in scientific literature. Since then several definitions have been published for ACP e.g. for specific groups of people (adults/persons with dementia) and regions (Asia). However, a global, inclusive and comprehensive definition and the structural elements necessary for ACP have not yet been developed, which makes it difficult to classify and compare studies on ACP and ACP programs. However, the ACP-i society considers such a broad definition to be necessary in order to improve the discourse and also the self-determined and person-centered care of patients. <h3>Research questions</h3> How can ACP be defined globally, inclusively and comprehensively and which design elements must an ACP program have? <h3>Methods</h3> A Delphi study will be conducted with international ACP experts of all continents with a qualitative and a quantitative part. For the qualitative part (05–08.2025), the experts are asked to add missing aspects to the existing definitions (especially target groups, regional aspects and elements) in a survey (Software: Welphi). The results will be evaluated by thematic analysis using MAXQDA by a group of experts and used for a focus-group workshop at the ACP-i conference 2025. In the quantitative part (01–03.2026), these results will be translated into a second survey. Experts will be invited to rate and validate the results based on their cultural and professional understanding and, if necessary, provide reasons. The number of rounds will depend on the respective outcome. <h3>Results</h3> The results of the qualitative Delphi study thematic analysis will be presented and discussed at the congress. <h3>Discussion</h3> The results should enable us to come closer to a comprehensive, global definition of ACP including common core elements. This definition should define different target groups as well as regional aspects and necessary elements that make up an effective ACP program. Based on this definition, ACP programs can be better classified in ACP studies and clinical practice. <h3>Unique Contribution</h3> The previous ACP Delphi studies provided a step towards unifying select regional consensus definition for certain groups of persons and recommendations. A globally-shared consensus-based comprehensive definition and necessary design elements for ACP programs will support consistent application within multidisciplinary clinical practice, policies, research, and law. <h3>Implications</h3> This work will significantly impact how ACP interventions are understood and adapted across cultures and better understand how ACP is practiced and conveyed to persons and those important to them in the global context.

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Publication Details

Journal
Poster
Published
2025-09-01
DOI
https://doi.org/10.1136/spcare-2025-acp.97
Primary Topic
Palliative Care and End-of-Life Issues
Type
article
Field-Weighted Citation Impact
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article

1256 A global and comprehensive definition of advance care planning: results of an international Delphi-process

Kornelia Götze, Craig Sinclair, Tanja Krones, Cristina Lasmarías et al.
Poster
Palliative Care and End-of-Life Issues
article

1256 A global and comprehensive definition of advance care planning: results of an international Delphi-process

Kornelia Götze, Craig Sinclair, Tanja Krones, Cristina Lasmarías, Erik K. Fromme, Cheng‐Pei Lin, Cari Borenko, Laura Kim Sieber
article en

Abstract

<h3>Background</h3> Advance care planning (ACP) has been firstly mentioned in 1993 and used increasingly since 2010 in scientific literature. Since then several definitions have been published for ACP e.g. for specific groups of people (adults/persons with dementia) and regions (Asia). However, a global, inclusive and comprehensive definition and the structural elements necessary for ACP have not yet been developed, which makes it difficult to classify and compare studies on ACP and ACP programs. However, the ACP-i society considers such a broad definition to be necessary in order to improve the discourse and also the self-determined and person-centered care of patients. <h3>Research questions</h3> How can ACP be defined globally, inclusively and comprehensively and which design elements must an ACP program have? <h3>Methods</h3> A Delphi study will be conducted with international ACP experts of all continents with a qualitative and a quantitative part. For the qualitative part (05–08.2025), the experts are asked to add missing aspects to the existing definitions (especially target groups, regional aspects and elements) in a survey (Software: Welphi). The results will be evaluated by thematic analysis using MAXQDA by a group of experts and used for a focus-group workshop at the ACP-i conference 2025. In the quantitative part (01–03.2026), these results will be translated into a second survey. Experts will be invited to rate and validate the results based on their cultural and professional understanding and, if necessary, provide reasons. The number of rounds will depend on the respective outcome. <h3>Results</h3> The results of the qualitative Delphi study thematic analysis will be presented and discussed at the congress. <h3>Discussion</h3> The results should enable us to come closer to a comprehensive, global definition of ACP including common core elements. This definition should define different target groups as well as regional aspects and necessary elements that make up an effective ACP program. Based on this definition, ACP programs can be better classified in ACP studies and clinical practice. <h3>Unique Contribution</h3> The previous ACP Delphi studies provided a step towards unifying select regional consensus definition for certain groups of persons and recommendations. A globally-shared consensus-based comprehensive definition and necessary design elements for ACP programs will support consistent application within multidisciplinary clinical practice, policies, research, and law. <h3>Implications</h3> This work will significantly impact how ACP interventions are understood and adapted across cultures and better understand how ACP is practiced and conveyed to persons and those important to them in the global context.

Poster
National Yang Ming Chiao Tung University (TW), Fraser Health (CA), University of Zurich (CH), UNSW Sydney (AU), Ministry of Health (ES), University Hospital of Zurich (CH), Ariadne Diagnostics (United States) (US), Heinrich Heine University Düsseldorf (DE)
Openalex Percentile: Top 44%
Palliative Care and End-of-Life Issues
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