Mapping Perceived Impact, Facilitators and Barriers of Cystic Fibrosis Management in Children and Adolescents: A Qualitative Study From the Parents' Perspective
Our findings suggest that disease management and specifically adherence to treatment recommendations is impacted by early diagnosis, attitudes towards the disease, social support and financial constraints. Future interventions should focus on identifying the needs and supporting the whole family to cope with the demands of the disease, namely by improving knowledge about the benefits of different intervention approaches.
Authors
- Raquel Penteado (ORCID: https://orcid.org/0000-0002-8939-3861)
- Alda Sofia Pires De Dias Marques (ORCID: https://orcid.org/0000-0003-4980-6200)
- Ana Bártolo (ORCID: https://orcid.org/0000-0002-0817-0157)
- Sandra Gagulic (ORCID: https://orcid.org/0000-0002-8002-7726)
- Teresa Reis Silva (ORCID: https://orcid.org/0000-0001-8374-2031)
Institutions
- Universidade do Porto (PT)
- Hospitais da Universidade de Coimbra (PT)
- Centre for Health Technology and Services Research (PT)
- Universidade Portucalense (PT)
- University of Aveiro (PT)
- University of Coimbra (PT)
- Instituto Piaget (PT)
Publication Details
- Journal
- Scandinavian Journal of Caring Sciences
- Published
- 2025-09-01
- DOI
- https://doi.org/10.1111/scs.70106
- Citations
- 1
- Primary Topic
- Cystic Fibrosis Research Advances
- Type
- article
- Field-Weighted Citation Impact
- 1.52
Funders
- Fundação para a Ciência e a Tecnologia