Caregiving for Adults With Down Syndrome: Caregiver Experiences and Support Needs
Our findings demonstrate that caregiving responsibilities can feel constant and unceasing, yet consistent routines and positive appraisal help ease the burden. Family and friends support thriving, but trusted options for transportation services, life transition planning and respite care are needed. Targeting these support needs may improve caregiver well-being.
Authors
- Lauren T. Ptomey (ORCID: https://orcid.org/0000-0002-1705-1643)
- Bethany Forseth (ORCID: https://orcid.org/0000-0002-4321-6034)
- Tara Wolfe
- Joanna Veazey Brooks (ORCID: https://orcid.org/0000-0002-7831-4849)
- Amy E. Bodde (ORCID: https://orcid.org/0000-0002-8143-8105)
- Kristine Williams (ORCID: https://orcid.org/0000-0003-1312-788X)
Institutions
- University of Kansas Medical Center (US)
Publication Details
- Journal
- Journal of Applied Research in Intellectual Disabilities
- Published
- 2025-09-01
- DOI
- https://doi.org/10.1111/jar.70118
- Citations
- 1
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 2.31
Funders
- National Center for Advancing Translational Sciences